Request from Dima

Children's hospice "House with a lighthouse" together with NT raises funds to help sick children

Dima Tisenkov is already six years old, but it's not always clear what he wants and what he doesn't, what he likes and what he doesn't like. The boy has spinal muscular atrophy, a rare and insidious disease that progressively affects every muscle in the body, including the respiratory and swallowing muscles. At home, Dima breathes through a special tube - a tracheostomy, and an artificial lung ventilation machine (ALV) works with his lungs. On a walk, he breathes on his own, but his mother has an Ambu bag with her, just in case, a manual device used for emergencies. All mothers of such children as Dima are somewhat resuscitators.

Natalya and Mikhail, the boy's parents, moved to Moscow from Krasnodar to treat Dima. In her hometown, doctors did not know what to do with such a child, and certainly did not teach her mother alternative methods of communication. The fact is that problems with the muscles do not allow Dima to speak, and he was not asked to answer for a long time, although he does not have a mental lag.

Now a play therapist has been working with Dima for a year now. He masters communication with cards. Choose your favorite cartoons and books. Teaches letters - a special soft, “tactile” alphabet was made for him. Mom Natalia really wants her son to learn to read. While Dima can leaf through the book, atrophy miraculously bypasses the hands, the boy's elbow is fixed, and he entertains himself with pictures himself.

Many children like Dima are constantly in intensive care and do not see their parents for weeks. The ventilator requires expensive maintenance - about 50 thousand rubles. every month. There is such a document - an individual program for the rehabilitation of a disabled child. It is binding on all government departments. Dima should have been included in it, but they did not include all these tubes and other consumables with which he breathes. The state is ready to pay for Dimino's breathing only in the hospital - where there is no play therapist, mother and walls "that heal."

Thanks to our donations, Dima will finally get in touch with the world by the age of six. It is already clear that he is growing up as a very serious, but also very reserved boy. Let's not let Dima shut up completely.

HOW TO HELP:

Send
SMS message

with the payment amount and the word "Dima"
to number 1200,
for example, "Dima 100"

Requisites

Charity
medical private institution
"Children's Hospice"

TIN/KPP 7704280903/770401001

r/s
No. 40703810238180000837

in PAO
"Sberbank of Russia"
Moscow

BIC 044525225

c/c 30101810400000000225

Purpose of payment:
"Dima"

From banking
cards:

https://vmeste.yandex.ru/childrenshospice

Contacts:

http://www.childrenshospice.ru

[email protected]

+7 926 588 20 35

Photo from the family archive