
“I really want no one to know how hard it is to fall asleep next to an empty bed and think about how he is there without mom and dad. I really want no one to know how it is to come to the resuscitation door every day and wait until the doctor comes out to find out at least a little about the condition of the child, ”says Yegor's mother.
Yegor is 3 years old, he has a Crabbe disease. This is an incurable genetic disease. Yegor was born healthy, learned to smile, walk ... And then - then a nightmare began. To the question of parents, does Yegor never be like all children, the doctor replied that there would not only be, like everyone else: at first there will be a probe, then a gastrostoma, then a tracheostoma, and in the end, Yegor could not live without an Ivl apparatus.
In the spring of this year, Yegor was taken into intensive care of the dad from his hands. Parents have never been allowed to the child. The philanthropists of the children's hospice helped to buy the IVL apparatus, my mother learned to use the device and took Yegor home. Now Yegor is at home, he can only breathe thanks to the apparatus of artificial ventilation of the lungs. “Now we are establishing life, rebuild our lives under new circumstances. But we are very happy together, ”says Yegor's mother.
In order for Yegor to live at home, and not in intensive care, you need 50 thousand rubles per month: for probe power and consumables for the IVL apparatus. The children's hospice gives readers: help Yegor and his parents.
So Yegor lay alone in the palliative department of the hospital, March 2016
How to help:
Send the SMS message with the amount of payment and the word "Yegor" to the number 1200. For example, "Egor 500".
Details
Charity Medical Private Institution "Children's Hospice"
TIN/CPP 7704280903/770401001
r/s No. 40703810238180000837
In PJSC Sberbank of Russia, Moscow
BIC 044525225
K/s 301018104000000225
Purpose of payment: "Egor"
From a bank card:
https://vmeste.yandex.ru/childrenshospice
Contacts:
http://www.childrenshospice.ru
+7 926 588 20 35
Photo: Grigory Agayan