
Moms of children with Down syndrome are very afraid that they will die before children - who will take care of them then? In the center "My Mom and Mamina" help not only to stop being afraid of life with a special child, but even to start rejoice at her
We help mine and my mother’s school collected 1,695 939 r required 1,660 171 rThe collection of funds is over
At the beginning of the story of John Steinbeck “On Mice and People”, a vagabond hard worker George now and then tells his mentally retarded friend, the tall of Verzile Lenny, how well he lived without him. He jokes over him, because he believes that his “recent” comrade does not even understand that they laugh at him, and cannot stand up for himself. Many times Lenny gets into trouble and needs George's help. We see how their relationship is changing: George is already so used to Lenny that he cannot leave him. He stoods for him and explains to everyone and everyone that Lenny "will not even offend the flies, even though he has ten strength."
This is a state when, after a desire to abandon a loved one, acceptance occurs is well familiar to many mothers who study in the center of early support of families with children with the Down Syndrome “My Mother’s School” in Irkutsk. The project has existed for two years and is aimed at early support for both parents and a “special” child - the center’s specialists know well that in our society, his mother automatically automatically gets into isolation with the child. Another is closely connected with this problem: in most cases, a “special” child, only born, becomes a “burden” of her mother - she is forced to take care of him all her life.
“The appearance of a child with developmental features is most often accompanied by the depression of the mother,” says Elena Vagenletner, a psychologist, specialist of the “mine and mother’s school”. - It is important for us to support it at the initial stage, because the acceptance of such a child is a great work. All the experiences of mothers are very sharpened, all her emotions depend only on how she perceives her own child. We know that the appearance of children in all people is connected with many fantasies about how they will grow, how their lives will turn out, as then, becoming grandparents, they will grow their grandchildren. ”
Helplessness, disappointment, shame and a feeling of guilt are the complex of feelings with which teachers (speech therapists, defectologists) and psychologists of the escort center work. It is important for them to do everything possible so that the mother, who finds himself in a difficult situation, managed to support the child in the future. But first, it is required to support her itself.
Specialists of the center of escort do not wait until families turn to them for help - they independently come to them in the hospital, clinics and rehabilitation centers. There they tell mothers and doctors about the possibilities of developing children with Down syndrome, conduct a briefing on the correct attitude towards parents - in particular, how to correctly give them a diagnosis of a newborn.
“Doctors should not make a diagnosis to the mother while mom lies on the maternity table. For example, the pediatrician informed me in the first minutes when my son was born that “some kind of Downenok” was born, ”says Liliya Shcheglacheva, the head of the project“ My and mother’s school ”. - It is necessary to report the diagnosis when the child is in the hands of one of the parents, and it is necessary to talk about the diagnosis, touching the baby, thereby showing acceptance. There are also other necessary principles, but most importantly - you cannot offer to abandon the child. The interaction of the specialists of the hospital and the parent organization is very important, and if it arises and develops, then in the first birthdays of a child with Down syndrome it is possible to help the family overcome stress associated with the diagnosis of the baby. Parents see other happy mothers, and other couples, and understand that the world has not collapsed, it continues to exist and quite happily. ”
Also, the project specialists help to arrange a child in ordinary kindergartens and secondary schools, which is much more difficult to do than, by tradition, carefully “hide” them in a boarding school or a correctional school or even pretend that the child was not born. Thus, “mine and my mother’s school” not only individually helps families whose children experience difficulties in development, but also conducts great work on the prevention of children's orphan or their integration into society.
And the teacher is angry, he has 30 more people, and this issue is solved by the child's isolation Twist this quote Most often, educators in kindergarten are faced with the fact that such a child requires special attention, that he is not always ready to be in a common group with children. To understand this, time is required, the additional work of the teacher himself. And the teacher is angry, he has 30 more people who need his care, and usually this issue is solved by the isolation of such a child. Of course, for a teacher loaded by the work, this is the best way out. And for the development of a child, this is a disaster. Plus - the despair of his parents and even some bitterness. All this gives rise to a vicious circle. And only it was necessary that the skills of socialization children get as early as possible. And then such consequences could be avoided.
For a “special” child, the main problem, as the center of comprehensive assistance for children with Down syndrome, is not a state of health, but the stereotypes of society about his inability to learn, work and develop along with everyone. This stereotype does not allow us to accept “special” children as full -fledged personalities with their capabilities and talents.
Another strong emotion with which mothers of “special” children do not always cope on their own - fear for the future of the child. Mom often worries how the child will live if he does not. They can be understood: in children with Down syndrome, self -care and behavior skills in public places are poorly developed, coordination of movements is violated, they begin to walk late.
The main problem is not the state of health, but the stereotypes of society about its inability to learn, work and develop Twist this quote Search, eat, dress, talk, take care of themselves about themselves with Dowun syndrome from Irkutsk and neighboring regions (for example, the Republic of Buryatia) can learn, as once you and I, only they will need a little more time. It is possible to master these household skills with the help of advanced game methods. But for this, the center of complex assistance for children with Down syndrome must be equipped with special rehabilitation equipment - a sensory room, the device of which increases the activity of perception in children with development and has the therapeutic effect that no specialist is able to have. Also, mothers themselves will be able to undergo rehabilitation in this room. This is important for them, because in the struggle for the future well -being of their children they spend so much effort that they do not always find time for themselves. It is correct to use this powerful rehabilitation tool for families with children with Down syndrome will help teachers and psychologists if we can raise funds for the annual payment of their work.
Already now, the project “My and mother’s school” helps 40 families. In 2016, the center would like to help 100 families with children with Down syndrome. To do this, you need to collect 1,660 171 rubles. At first glance, a huge amount. But if we do not help families with “special” children, no one else will fill this drawback of the state system of early assistance. Bringing their baby to kindergarten, parents will hear contemptuous phrases that their children have a place in the correctional garden, and not among normal children. Let's make mom and dad no longer feel compassionate or squeamish glances and were not afraid to come with the child to the playground at any time. They did not refuse the child either in the maternity hospital or beyond.
Remember what the stinbek story ends? The mentally retarded Lenny dies from the shot, - the best friend George lets the bullet into his back of his head. We can say that George understands that his friend lives hard in human society, and so decides to save him from hopelessness. Imagine that a bullet is a specialized institution where it is impossible to fully socialize and adapt to our world. Any donated amount will help Lennie find a way out, now you know that he is.