Money for Alina

The New Times, along with the children's hospice "House with a lighthouse" collects help to sick children

Alina is very sociable, although he can only move her eyes

Alina wakes up, washing, sits down in a stroller, breakfast and watches cartoons.

- Will you watch Luntika?

-Ah.

- And "Masha and the bear"?

-Ah.

Alina has congenital genetic disease-spinal amyotrophy of verdniga-goffman. This disease selects the opportunity to move, because immediately after birth, the muscles of these children are weakening with geometric progression. Now Alina is available only one independent activity - she can move her eyes.

There is another muscle in the body that the disease does not touch - its heart.

Alina cannot breathe. It is connected around the clock to the apparatus of artificial ventilation of the lungs (IVL).

Alina understands everything and communicates with the world and the two main interjections in her life: “a-ha” is “yes” and “a-a-a-a”-this is “no”. And when he wants to shoulder, he answers questions out of place. And mom understands that Alina has a good mood and needs to get hooking. And she loves to talk on Skype. Especially with a dad who spends a lot of time at work: dad has to work a lot, because a lot of money goes to consumables and everything necessary for Alina's care.

When Alina was six months, her mother began to notice that the girl was weakening, the pens and knives are sluggish. After some time, she almost could not hold the head. Doctors in Moldova, where a young family lived, diagnosed myopathy. Alina's mom and dad decided to fly with her to Moscow. But on the plane it became ill. Alina could not breathe, her temperature rose. From the airport, she was immediately taken to the hospital at the ambulance.

There, Alina was placed with tracheostoma and gastrust - to breathe through the hole and eat through a tube in the stomach. And Alina's mother and dad voiced the final diagnosis: spinal amyotrophy. Doctors said that Alina could never breathe again. And if parents want to take her home, they must buy a home apparatus of Ivl. The device has been breathing behind Alina for three years now. And the time has come for the technical test and repair of microdents. It costs 150 thousand rubles.

Once the device was already breaking. While the ambulance was driving, my mother was pumping an outpatient bar with her hands so that oxygen would enter the lungs. Alina lay alone for several days in intensive care. If before that she could breathe a couple of hours herself, then after this case - no more than a couple of minutes.

Mom can do a lot for Alina. But only the Ivl apparatus breathes for it.

How to help:

The fastest way to help is to send a message with the amount of payment and the word Alina to number 9333.

Banking transfer

Recipient: Charity Fund for Helpings "Vera"

Recipient Bank:

Sberbank PJSC, Moscow

Settlement account 40703810438180133973 (RF Rups). TIN 7724296034 KPP 770401001. BIC 044525225

Cor/Account 301018104000000225

OGRN 1067799030826

Payment of payment: charity donation for Alina

PayPal: [Email Protected]

From a bank card: here

If you have questions, write and call: [email protected] ,

+7 (968) 029-38-29

Photo: Family Archive