
Timothy is sick of the muscle dystrophy of Duchenne. This is a genetic congenital disease that does not immediately manifest itself. Timothy grew up a healthy child, he just began to walk a little later than his peers. By the age of 5, he cleverly jumped on his favorite car wheels on the playground and was pleased with everything. But some time passed, and he stopped grabbing the strength to climb the stairs: the neurologist told his parents that these were most likely the consequences of a birth injury and directed for massage and physiotherapy. But it didn’t get better. Timothy began to get on all fours - he said that he was so more convenient. The line “Delay of Mental Development” appeared in his medical record ...
Duchenna myopathy develops slowly and often masks under other diseases. But children with a ducal have their own special gait and gestures that you can’t confuse with anything else. When the parents led Timofey to an experienced neurologist and she saw Timofei getting up from his chair, leaning on her knees like a climbing, she said: "This is Duchenn." Genetic analysis confirmed an incurable disease. Timothy by this time was six and a half years old.
Mom Timofey cried a month. And then she told himself that her son would not be better from her tears. Since then, she has done everything possible for him, knowing that Timothy's disease is incurable and progressive.
Timothy is now 10 years old. He stopped walking just a few months ago and moved to the chair. Despite the fact that this change in his life is irreversible, he was very glad of his first street stroller, because with her he can go to the park, the movie, play with friends on the street, and not only sit on the bench next to the entrance, afraid to take an uncertain step. If the road is good, Timothy can ride a stroller on the street. But without the help of his mother, he will not overcome a single border and unevenness.
He no longer goes to school - he was tired of answering constant questions “What happened to you” and notice oblique looks: he is engaged in at home with the teacher. He does not like mathematics, but easily copes with the Russian language and literature. In his free time from lessons, he plays computer games and reads fairy tales of a nine -month sister.
Timothy is growing, his muscles weaken, and he no longer has enough strength to hold his back. Therefore, he needs a special chair that will take into account all the features of his posture and in which he will be convenient to deal with the teacher and dine at the general table.
A chair for Timothy costs 251,260 rubles.
When the children grow up, parents rejoice, but for Timothy, growth is new problems with the back
Send
SMS message
With the amount of payment
and the word "Timothy"
to number 1200.
For example,
"Timothy 500".
Charity Medical Private Institution "Children's Hospice"
TIN/CPP 7704280903/770401001
r/s No. 40703810238180000837
in PJSC "Sberbank of Russia" in Moscow
BIC 044525225
K/s 301018104000000225
Purpose of payment: "Timofey"
From a bank card:
https://vmeste.yandex.ru/childrenshospice
Contacts:
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www.childrenshospice.ru
+7 926 588 20 35
Photo from the family archive