The adventure of Goshi

Little Gosha lives in Simferopol. The relapse happened to him in January 2014. And already in March, his parents had to urgently rebuild and look for money and quotas for treatment in a completely different country

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Eight -year -old Gosha Shishov in October flew to St. Petersburg from Simferopol along with his dad Maxim for the next planned examination in the research institute of children's oncology, hematology and transplantology named after R.M. Gorbacheva, where two and a half years ago he suffered bone marrow transplantation.

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This small, thin man flaunts in fashionable black pajamas in an apartment, which the ADVita charity fund provides on the Petrograd side to its wards and their families during the surveys and operations. Gosha communicates every day on Skype with his mother, who remained at home in Bakhchisarai with the eldest son of Seva, obediently travels with dad to the doctors and carefully makes lessons.

When I came, Gosha specified what my name was, neatly and without errors wrote down my difficult surname, showed dad and to me, attributed the word “journalist”, photographed the result of his work on the phone and immediately sent a picture of his mother.

He was a little shy and was basically silent, especially since his dad Maxim spoke for two. Gosha nevertheless honestly sat in front of me on a cot with a look of a speaker at a press conference, looked at me with obvious curiosity and with a wide, like Pinocchio, at a smile erased cookies. “I like hamburger and fruit potatoes more, they don’t sell them from us, but dad says that we need to eat soup,” he admitted with a heavy sigh.

Gosha photo: Natalia Bulkina/Schischi for TD Gosha with dad Maxim photo: Natalia Bulkina/Schischi for TD

Gosha listened to Papin a story about his misadventures with such interest, as if he had read a fairy tale, but, despite the frank tragedy of history, continued to sincerely and somehow encouraging me and generally with all its appearance exuded such optimism and positive that it seemed that he could be recharged from him, like from a battery.

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In 2009, when Gauche was a year old, and he barely began to walk, his parents noticed that he was somehow limp. Doctors did not immediately diagnose him “acute lymphoblastic leukemia” and sent Simferopol to the children's clinical hospital, the most advanced in the Crimea at that time. In the Department of Oncgetology, as Maxim says, they “went through all the circles of hell and in general everything that needed to be passed”: from the search for rare and expensive drugs to finding money for them.

Gosha entered a stable remission, and he was released home. But in December 2013, Gosha suddenly again began to limp and complain about pain in the leg. Parents were worried about the goshins because of the prospect of the “spoiled New Year”, because the child somehow was very inappropriate on the eve of the holiday. Imagine, Maxim says, it seemed to me and my wife the most terrible that we could not celebrate the New Year normally.

And in January 2014 there was a call from the laboratory assistant of the Bakhchisarai clinic, where Gosha from year to year donates blood from a finger weekly. The laboratory assistant said that the Dryan case was a relapse.

Gosha photo: Natalia Bulkina/Schischi for TD Gosha photo: Natalia Bulkina/Schischi for TD

And Gosha got into the hospital again. He was prescribed intensive chemotherapy. But she did not help. Gosha was temperature, his complications began. The doctors were gloomy in their eyes, the tests became worse and worse. And then it was about the need for urgent bone marrow transplant.

In Ukraine, allogeneous transplants (that is, when they do not transplant their cells, but strangers) did not. In Russia, such a transplant for non -citizens cost about three and a half million rubles. In Germany - about half a million euros. The amounts that in the rubles, in the euro, were equally prohibitive for Goshin parents. But what was to do? Again, as in 2009, the family had to look at the funds in aborarge-relatives, acquaintances, friends, work colleagues.

The Shishovs fell asleep in one state, and woke up in another. It became completely unclear where to be treated

But here - again inappropriately, as with the celebration of the New Year - there was a separation of Crimea from Ukraine. The Shishovs fell asleep in one state, and woke up in another. Goshins were confused and frightened - it became completely uncommon where to be treated, and the precious time was leaving. Mom Lena sat on the Internet from morning to night, talked with all the charity funds that she could find. Maxim ran with documents, made copies and sent to everyone who responded to Lena's requests. One of the funds answered Shishov that they definitely needed in St. Petersburg, for full -time consultation at the Gorbacheva Research Institute.

Meanwhile, summer has come. Thanks to highly dosage chemotherapy, Gosh managed to somehow bring into remission, and he and his mother were able to fly to St. Petersburg. There they decided to urgent bone marrow transplant. The doctors were in a hurry, there was no time to search for a donor in the international register of bone marrow donors, and they first wanted to make a Gaucher transplant from their mother. But then they pulled their dad and decided that he was better. Transplantation was prescribed for September.

Gosha photo: Natalia Bulkina/Schischi for TD Gosha photo: Natalia Bulkina/Schischi for TD

The Shishovs returned home and began to seek a federal quota for treatment in St. Petersburg. A complete confusion reigned in the Crimea, the documents were lost or the wrong way was getting there. But still, Gosha and his mother and dad again flew to the Gorbacheva Research Institute. Doctors advised the tortured parents to go to the Advita Foundation.

The Shishov ADVITA pleasantly surprised: they met as relatives, handed the address of a rented apartment and instantly instilled in it. There the family lived during the Goshin examination and the tests of tests, which are required before hospitalization.

Transplantation was appointed on October 1, 2014. She passed successfully, and a week later Maxim had already flew home, and a grandmother was called to Gaucher in St. Petersburg to replace her mother.

Since then, Gosha has been regularly in St. Petersburg. Now Gosha is doing well. Well, how good it can be in the proposed circumstances. From the consequences of transplantation - stomach problems and low immunity. Therefore, now he is studying at home, like his elder brother Seva, to whom doctors are diagnosed with autism and “scattered attention syndrome”. But Gosha is no longer lame and even began to slowly engage in physical education in order to quickly gain strength and at eight years to stop looking like a preschool.

Mom Goshi and Seva shortly after Goshina transplantation underwent surgery on the lungs (pneumothorax and lung rupture) and spent two months in the hospital. Then Goshina’s grandmother was removed the kidney.

Gosha with dad Maxim photo: Natalia Bulkina/Schischi for TD Gosha with dad Maxim photo: Natalia Bulkina/Schischi for TD

Now, only Maxim works from the whole family, the salary of which is approximately the same amount as the two pensions of his sons (Gosha and Seva receive a disability pension - 17 thousand rubles per brother). But once every six months, Maxim has to take the sick leave for the duration of the Goshin planned examinations and trips to St. Petersburg, where two tickets for the aircraft - for Goshi and dad - are only as much as the modest Goshina pension.

Two plane tickets only in one direction cost as much as a modest goshina pension

Seva, who has since got Gosha got sick, has not enough parental attention, two frogs and a turtle live at home (having heard about the pets, Gosha has enough phone to show me their photos). When Maxim says that they still want to get a dog so that Seva and Gosha play with her and rejoice, Gosha comes to life:

Read also Two sisters are the only thing that can save Alena is a bone marrow transplant. She was lucky - her sister Olesya approaches the role of a donor. But the Happy End in this story is still far away

“We wanted a cat too, but a cat is impossible: I have an allergy to wool. And the dog can also be without wool. Well, that is, such a smooth one. ”

Goshina Family believes that soon all the complications will be over. It was lucky: parents, their friends and relatives, doctors of the children's clinical hospital in Simferopol and the Research Institute of Pediatric Oncology, Hematology and Transplantology named after R.M. Gorbacheva in St. Petersburg, employees of the ADVita charitable foundations, Live Assistance and the Russian Assistance Fund and completely unfamiliar people who transferred money to the Fund, helped.

But other children with a diagnosis of “acute leukemia” are waiting for help today so that the doctors manage to make a transfer on time, bring to remission, and the children returned to ordinary life and, possibly, were able to get a dog or cat.

Adults with different diagnoses requiring expensive chemotherapy and bone marrow transplantation are also waiting for this help and believe in it.

Bone marrow transplantation from the donor is the last chance for many patients with leukemia, severe forms of anemia, various tumors, genetic diseases, etc. Transplantation itself is just a transfusion of stem cells, which takes no more than an hour. But in order for transplants to become possible, the uninterrupted functioning of a large number of laboratories is necessary: ​​sometimes the patient is done up to ten tests per day for several months. Before and after the operation, you need a huge number of laboratory research. The laboratories are deprived of systemic financing from the state. Applications are submitted every year, but not one of them received funding in full. Sometimes the allocated money is enough for several months, sometimes for a couple of weeks.

We can help thousands of patients undergoing treatment in the R.M. clinic Gorbacheva, help the same how others helped Gaucher. This is very simple - arrange a monthly donation from your bank card with a size of only 100 rubles. It is from small amounts that huge results are added up.