Timur and his saving team

After the osteosarcoma transferred, 12-year-old Timur suffered from monstrous pain for several months. Mom tried for a long time to help her son on her own, because she was afraid of the terrible word "hospice". In the end, she decided

Help a house with a lighthouse help

In the summer of 2015, Timur rested with his grandmother in the south and awkwardly hit his foot on a swing. As Mom Timur Tatyana says, "which of us did not run in childhood, did not jump, did not fall."

- We lived an ordinary life. The child was born in the family. The only thing that developed faster than ordinary children, ”says Tatyana. - That is, in a year he weighed 16.5 kilograms. No one overfeed it, he just has such a constitution. And so he grew up, grew up to eleven years. He was just large. Imagine, now it weighs 52 kilograms ...

“And two years ago I weighed 89,” Timur inserts merrily.

“No, no, 93,” Tatyana corrects. - Despite the fact that the growth was slightly less than now. Timur even grown a little during the time that lies.

In the south, Timur spent a week, then returned to Moscow, but continued to limp.

- There was a bruise - passed. And he is lame. In the fall, Timur goes to school and says: "Mom, I can’t go to physical education." I don’t understand-something has been hurting for a very long time. Somehow strange. In August, the youngest son had pneumonia, we went to do a second X -ray after illness, and I say: “Come with me, we will also do an X -ray.” The next day, my grandmother comes - she works in the hospital - and says that she has a hysteria, gives us a piece of paper, and it says: the sarcoma is osteogenic.

"We do not know why, but your child has survived"

Tatyana with Timur and youngest son Adam live in the village of Fryanov, the Shchelkovo district. As often happened in Russia, painful campaigns in doctors in attempts to confirm the diagnosis - in district, regional and Moscow hospitals.

Timur photo: Pavel Volkov for TD

- We were sent to Shchelkovo to computed tomography of the bones, saying that no one makes such a diagnosis according to X -ray pictures. “You have a myositis - warm it, you will have everything resolved.” I did not go to warm, we went on, not to ours, but to the Schelkovo hospital. We came to an orthopedist. I say: “Make your diagnosis. I have two options - myositis and osteosarcoma. Put me your diagnosis, because if it is oncology, then you can’t warm, I myself know it, although I am not a doctor. ” He takes a picture and says: “You don’t need to go to Balashikh, go to Moscow.”

In Moscow, in the RONC on Kashirskaya , the worst was confirmed. Osteosarcoma of the left fibula, second stage. Timur was prescribed the first course of chemotherapy. With osteosarcoma, the most optimal is the most severe chemistry. At the same time, as Tatyana explained, children have a dosage ten times more than in adults.

"Don't remember, please!" - asks Timur. He looks at his mother with great tenderness, even when he is angry and grumbles

“Then we were prescribed a second course of chemotherapy - methotrexat,” Tatyana recalls. - This is a very strong chemistry, such a yellow thing. The doctor, when she brought her, said: “Timur! You will be dripping an orange now "...

- "Fanta"! - Timur is again forced to correct his mother and looks at her with a condescending reproach.

- “Fant”, yes! - Tatyana is corrected. - And from this “phantom” we had a breathtaking reaction. All the side effects that could have been left. Two days after the second year of chemotherapy, Timur was discovered by sepsis, there was internal bleeding. Timur was introduced into the artificial one, established the tracheostom because he could not breathe, he had hemodialysis for six days, because the kidneys completely refused. There was a hundred percent picture of immunity. All doctors, resuscitators - all - said: "He cannot survive." Then they come and say: "We do not know why, but your child has survived."

Timur spent a month in intensive care. January 11, 2016 - on that day Timur turned 12 - he was transferred to a regular ward. The President of the Russian Society of Children's Oncologists Vladimir Polyakov immediately told Tatyana that there would be no more chemotherapy. ““ No one will ever prescribe any drugs again, because for you any chemical reaction will be deadly, ”Tatyana recalls the doctor's words. - I say: "And the tumor?" We planned three or four chemotherapy courses, then the operation. And here it turns out - that's it? And what to do? And he says: "We are deciding now."

Timur's legs with a tape-plastic photo: Pavel Volkov for TD Mom Tatyana Changes Tip School on the Timur's leg photo: Pavel Volkov for TD

The operation was done on January 19. The doctor warned that his leg would most likely have to amputate. Tatyana remembers that day well. At 10.15, the doctor went to the operating room, went out at 12.15 and said: "The leg managed to save."

This is a terrible word "hospice"

- Just then I was called the head of the children's hospice “House with a lighthouse” Lida Moniava. I don’t know how they learned about us. She called me herself. She introduced herself, said she was from the hospice, and I immediately said that I did not want to communicate. Because for me the word "hospice" ... Well, you know, yes? This word is not very good. -Tatyana reinss Timur with a special analgesic anti-reduced tape-plaster-this must be done all the time. Timur cries out in pain. Tatyana reassures with a smile - this is not a scream, a real scream was after returning from the hospital. Timur could not even move a finger without pain, he did not move at all. And he screamed all the time.

- Mother is a sadist, yes. Nobody ever explained to me what is possible, what is impossible. I began to do the massage on his feet. He screamed. You know how he screamed! “Help, save, neighbors! Mom kills me! " Our grandmother and Artem were running out of another room: “Timur, what are you doing? You see, the windows are open - summer is on the street. Mom doesn’t kill you, she wants you to stand on the legs, do not scream like that. ” Sadist way, probably. But I did not think that he was sadistic. I kneaded his legs and bent my knees. But he shouted like that!

- Do not remember, please! - asks Timur. He looks at his mother with great tenderness, even when he is angry and grumbles.

“That's why now I already ask Timur to do something myself,” Tatyana explains. -When he does something himself, he himself knows whether it hurts him or not. Before that, he could not do anything at all. Before that, he was just lying. Now he is sitting himself and sitting.

For several months Tatyana tried to cope on her own, because she did not receive help from anyone, and the word "hospice" continued to scarely scare. But in the end, the forces ended. Tatyana went to the "House with a lighthouse", where she was waiting for a rescue team.

Timur school friends do not forget, write, call, but rarely come to visit - mainly on vacation

“There I was met by the physical therapist Ilona Alkandze. She is cool, then we communicated three or four again with her. On the first day, when I began to tell her how I was doing Timur, she looks at me with such eyes: “There was no need to do this!” Then Olga Cheban contacted me. I remember, I tell her: “Olechka! And maybe we are“ not yours ”?” - And she: “So we help you. What are you bored? You don’t even know what to do! You need help.” ”

Timur and his mother Tatyana photo: Pavel Volkov for TD Timur and his mother Tatyana photo: Pavel Volkov for TD

So the “House with a lighthouse” began to help Timur and Tatyana. First of all, the hospice provided the boy with a specially equipped car with a driver for traveling to Moscow for examinations. Each trip is a harsh test, because Timura every time you have to lower and raise it back to the fifth floor - there is no elevator in the house. Especially the employees of the "House with a lighthouse" helped in October, when Timur again began to refuse the kidneys. They helped everyone - the necessary medicines, tips, consumables. Literally at any time.

“Hospice and I have passed a lot of doctors, whom we did not even know about,” Tatyana recalls. “I don’t even know where I would look for these people.” At least get into the “Philatovka”. I do not think that we could do it ourselves. Even think of it. I did not even know who the nephrologist that we needed, and where this Filatov hospital is. ”

January 19, exactly a year after the operation, Timur went to the next examination to Moscow. This time, mom had to put him in his car - the one that the “House with the Lighthouse” had previously sent, unexpectedly broke, and it was necessary to go urgently. But there are pluses in this too-now Tatyana knows that in some ways you can again cost on their own. And the results of the tests are encouraging.

Now Timur is waiting - it will not wait when a new stroller will be brought from the “House with the Lighthouse” in return for the one that he uses - cumbersome and uncomfortable.

Timur on the bed photo: Pavel Volkov for TD

And Timur also hopes that someday he will be able to go to school again. Now teachers come to his house, check the tasks, put fives and leave. Timur’s school friends do not forget, write, call, but rarely come to visit - mainly on vacation. “Friends say they are given a lot of them,” Timur explains.

You need your help

Children's hospice “House with a lighthouse” is a charitable organization. Every year, to help with cancer patients, she needs a huge amount - about 30 million rubles. Unfortunately, children will always hurt, which means that such a huge amount will be needed every year, again and again.

Please support the work of the children's hospice, having issued a regular donation that can help more than once, but constantly. Even the smallest amount-100, 200, 300 rubles, regularly sacrificed by you, will help to relieve some of the hundreds of children from pain, which is helped by the children's hospice “House with a lighthouse”.

Please do it right now. Thank you.