End to Andrei

NT, together with the children's hospice "House with a lighthouse" continues to collect money for helping sick children

Even if you do not think about it, such diseases as Andrey’s. Myopathy Duchenna is a disease for boys. Girls never get sick with it, and adults rarely get sick. The average life expectancy of patients in Russia is 22 years. In Europe - 28 years. But these are statistics, and inaccurate. In Europe, patients often live up to 40. In Russia, such an adult patient with a duchese so far is only one.

In Andrei Semenov, all body muscles are mysteriously atrophy. Genetic breakdown in the X chromosome. The gradual dying of all muscles is from legs to the heart. Myopathy Duchenna-the most malignant appearance of all neuromuscular dystrophy, cannot be cured.

Andrei gradually develops in half. This is in a medical person is called kyphosis-deformation of the spine. He cannot sit in an ordinary chair. And even in his magical electric stroller, which gives an immobilized young man a little independence, as he is controlled by a joystick.

Only recently in Denmark they came up with a chair for Andrei. This is a complex technology - you need to put the guy in a vacuum pillow, which will make out the body shape, scan the form in 3D, send the image to the Danish factory, where the robot will drain the desired shape from the sponge, one person will finalize all the details and bends behind the robot, and the other will fit soft sponges in the place of severe curvatures so that it does not hurt. The third will make individual support for any deformation in the chair, the fourth will cover the chair with a primer and make a cover. Then the chair will fly to Russia.

Andrei is 20 years old, and the disease progresses every day. When Andrei develops, his lungs, as it were, decrease in volume, and there is not enough oxygen. The young man is suffocating.

A chair for a deformed person is a medicine for Andrei. In Europe, boys with a ducal can grow into men, because for them they come up with such drugs. Without pain and comfort, they can fight for their lives.

The Danish chair for Andrei costs 375 thousand rubles. Together we can help him fight.