Seam at the temple

Teenagers rarely eager for school as Ulyana. But after two operations to remove the brain tumor to learn more difficult and difficult to study. But the girl doesn't give up

We help genetic studies for children with brain tumors collected 2,871,900 R required 3,000,000 r

The collection of funds is over

At the age of 15-16, each pimple becomes a drama of a universal scale. And then the seam is on the temple. And kilograms gained on hormonal therapy that haunts and spoil the mood every time mom offers to buy something. At the photo shoot, Ulya is shy and asks to photograph so that the face is not visible. A charming white -toothed smile, a crafty look and bubbling energy, the desire to communicate and delight and will remain behind the scenes. Even with girlfriends, she takes pictures, hiding the right side of the face from the camera. The seams are almost invisible, and soon they will hide under the new dark brown curls.

Every day when you don’t have to drink pills, Ulya goes to school. It is not yet possible to study with everyone. Too big load. But there is no strength to sit on the seat. Very boring. Mom decided not to insist on the visits of teachers home. The road to school and back and several hours of classes are the main entertainment streets today. Mom says that Ulya simply burns from a lack of communication. A holiday when at school it is possible to see girlfriends, and sometimes sit in a lesson with their class.

A year and a half ago, trouble entered the life of an ordinary Volgograd family. Such, looking at which the heart rejoices, and there is especially nothing to tell. A friendly prosperous family. Mom and dad, daughter and son, grandparents. Your house, farm. They work, study, love each other. Everything is like everyone else. Only Ulyana after school once had a headache. Well, with whom it does not happen.

Ulyana with mom photo: Natalia Platonova for TD

As a child, Ulyana was engaged in dancing, swimming, loved to draw and play with her brother. Drama circle, a circle in the photo, and also to sing a hunt. Energy through the edge, interests and hobbies push, without accommodating per day. Grown. Walks, girlfriends, ordinary girlish secrets and dreams, first cosmetics, fashionable outfits. I wanted to become a designer. She argued with teachers who, a sociable, responsive girl, had a career of a teacher or doctor. And then she just got her head. Well, tired, did not get enough sleep, overstered at school. With whom it doesn’t happen, my mother thought, gave a pill and laid down to bed. Ulya's day laid out at home and returned to school, and a week later she felt bad right in the lesson. Here, the parents seriously stuck the alarm. The therapist, a neuropathologist, tests, ultrasound did not find anything serious. And the well -being of the street improved. But mother did not let go of Marina, intuition did not work, - I need to make an MRI. Doctors reassured that it was an excessive measure and a vain panic. But after the urgent requests, the direction was given. It was a month to wait for your turn. But there was no strength to wait. I wanted to quickly dispel all fears and return to the usual cozy world. And mother led Ulyana to the commercial medical center.

When, after the MRI, with the contrast and without, Marina drew attention to how the doctors ran into an concern from the office into the office, her heart sank from a bad foreboding. A few hours later she was called to the office and said that the 14-year-old Ulyana has a brain tumor, a pilir astrocytom. The world staggered. Ulon Diagnosis was a shock for everyone. Friends, relatives connected, and everyone unanimously decided that we had to go to operate in Moscow, at the NH NH named after Burdenko. And my mother and Ulyana went.

Ulyana makes lessons photo: Natalia Platonova for TD

Until the first operation, all the troubles that had advented with her did not realize. It was most worried that due to the operation would have to part with long, luxurious hair. And she asked with the hope of Volgograd doctors, whether it was imperative to cut themselves. But those from such stupid questions only dismissed. In Moscow, doctors did not confuse Ulyanino wealth. Only neatly blown a little right temple. After a couple of weeks, Ulya and her mother returned home, as they did not leave. Only a tiny, barely noticeable seam on the temple reminded of an unpleasant adventure. Ulya rushed into battle, did not want to sit at home, really missed her friends. Active sociable chatterbox Ulyana was unbearable home imprisonment. And after a couple of months, her mother allowed her to go to school with everyone, and not to engage individually.

But six months later, at the next control MRI, it became clear that the tumor returned. Even the doctors were surprised: relapse with this type of tumor sometimes happens, but after a few years, not months. Ulyana returned to the Burdenko Research Institute in just six months later. The second circle was emotionally more difficult to survive. When my mother roared, looking like luxurious curls fall off in bundles after radiation and chemistry, Ulya only grunted: “Well, what are you crying! Not your hair. And I will still grow up. ” Marina says she did not even think that Ulyana would be so strong. Most of all, Ulyan is not upset by chemotherapy, for five days a monthly cutting down and turning inside out, not endless tests and doctors, but a lack of communication. Girlfriends sometimes run to visit. They joyfully hug and chirp at the meeting. But I would like to go to school again with everyone every day.

Teenagers walk along the shore, not far from the school where Ulyana is studying

After the operation, doctors recommended that the molecular genetic study be passed in order to accurately choose therapy and predict the consequences as accurately as possible. For the study, it was necessary to pay a considerable amount, and realizing that they themselves were financially not to pull, the parents of Ulyana turned to the Constantine Khabensky charity foundation.

Molecular genetic studies are not included in the compulsory medical insurance, and families with sick children turn out to be one on one, sometimes reaching 200 thousand rubles. They find themselves at the moment when they are already devastated by expenses for long -term treatment of the child.

In previous years, the Konstantin Khabensky fund raised money for complex expensive research addresses for each particular child. Each time it took several weeks, precious weeks, sometimes critical for a sick child who needs immediate treatment. In 2015, assistance to molecular genetic research was provided to 21 children, in 2016-123 children. This year, the Konstantin Khabensky Foundation decided to open the target fee for molecular genetic studies in order to be able to respond as quickly as possible to the requests of desperate parents without wasting a priceless time.

Ulyana on a walk, not far from her house photo: Natalia Platonova for TD

The tumors of the brain in distribution occupy the second place among cancer in children. But if you catch the disease in time, correctly diagnose it and choose exactly treatment, more than 70% of children have every chance of recovery. Each tumor and every child needs his own individual treatment program. It is the testing of molecular genetic markers that allows you to determine the type and subspecies of the tumor, the expediency and duration of treatment, to understand which drugs are necessary. It is very important to conduct these studies as early as possible.

If you arrange a monthly donation in favor of the Constantine Khabensky charitable foundation for any, even the smallest amount, you will help children with the brain tumors on time to get diagnostics and the right treatment.