Mosenna in the Vyshny

On April 16, on Easter, Eugene and Oksana Kolbini and their twelve children had their own holiday - exactly ten years ago the first adoptive children appeared in the family. Now there are already nine of them. Two of them - with severe congenital diseases

Help the back of Bifida help

We meet with the Kolbin family on the main square of Vyshny Volochka on Palm Sunday. On weekends, Eugene and children go to the only theater in the city. The whole family can’t get out - in the old “Ford” there are only nine seats, and the path to the theater is not close, do not reach on foot, and besides, the “younger” Dima should be carried in his arms - he has Spina Bifida, a hernia of the spinal cord, and he does not walk. The same diagnosis of twelve -year -old Masha, but it can still walk.

This Sunday with dad - the adoptive children Sonya, Alya, Masha, Nikita, Oleg, Dima and the youngest of the blood - Lenya.

Masha, Dima, Alya, Sonya, Nikita and Lenya play in the city center. Lions - Favorite Place for Photo Photo: Oksana Yushko for TD Alya plays near the playground in the city center photo: Oksana Yushko for TD

After the performance, children have fun at the playground, ride a sad pony named Lutik, and Eugene runs to the store for a huge bag of seeds - to feed pigeons. The pigeon, however, comes across only one, and the children's seeds immediately scattered almost everything. And we go to the “slide” - the so -called area where the Kolbin family lives.

The eldest daughter Lena went to study in St. Petersburg, and mom, dad and eleven children live in a small wooden house. The house stands on the outskirts of the city, where the quarters of the gloomy, rolled five -story buildings end. All children have “their” rooms - however, for two, and one and for three, and mom and dad live in the living room. The restroom, albeit village, but in the house, and behind the house - a small bathhouse.

While Oksana’s mother is setting on the table, I will find out what lunch is for thirteen people. The bank of sour cream and a dozen eggs is only to season sorrel soup. And the “bucket” of the pasta and Mount Salad.

Sunday is a bath day. Nikita and Oleg in the bath photo: Oksana Yushko for TD

After lunch, the older girls clean the table and help to wash the dishes, the rest of the children enthusiastically dance around the room under the song “Cuckutics”, which is exhaustively describes the mother - Oksana:

“An elephant has a nosy mother,
The chick has a winged mother!
And the hedgehog has a prickly mother,
All the same, she is the best!

Moms are all without doubt beautiful
All beloved, kind, different!
And all the children are good for mom,
Because moms are similar!
And everyone has his own! "

And we finally sit down to listen to the story of mom. From afar, but in order:

“It all started when, after school, I did not enter the medical institute and went to work in the hospital. There was a girl who for some reason immediately attached me, ran after me and said: “Mom, mother!” Her name was her name. I had to quit, because she waited for me on the porch every morning, and in the evening she escorted home with tears. And then I acted and every summer was practiced in a children's hospital, and again these children, again these children, my mother says: “Well, you are in general. How do they stick to you! ""

Dinner. Dima usually eats badly, in a boarding school favorite food was porridge photo: Oksana Yushko for TD Oksana is looking forward to when additional premises in the house are completed. The lack of rooms and the insufficient arrangement of the house stopped Oksana and Eugene before they took Dima from the boarding school, since they were not sure that they would have a good photo: Oksana Yushko for TD

- In 2007, when we already had two daughters - Lena and Nina, I worked in the hospital. And there I saw a topic. There was such a pretty boy, but I did not take a chance.

“And Vitka is bad,” the topic joyfully inserts when Vitya enters the room.

“Vitya is also good,” Oksana corrects. - And after a few months I was asked to work part -time in the child’s house, and there I saw the topic three months again. And you, Vitya! So we took a three -month theme from the child’s house and two -year -old Vitya. April 16 will be ten years as we have.

Ala, Oleg and Nikita appeared in the Kolbin family - sister and brothers, children of the war for the "Russian world"

Two years later, Pope Eugene, at that time - the head physician of the tuberculosis dispensary, he heard from the head of the house a child about Masha: “We have such a girl - so sorry! Everything is fine with intelligence, but he doesn’t walk with legs. And it’s a pity - he will go to the boarding school very soon. ” “So we got this miracle,” Oksana laughs.

Here is what Spina Bifida charity programs told us, who made an individual assistance program for Masha:

“The diagnosis is Spina Bifida of the sacral spine, paralysis of the lower extremities, impaired function of the pelvic organs, small deformations of the knee joints. Masha walks on his own in special devices. Like most children with Spina Bifida, Masha - an intellectually secure girl, goes to school and studies there well ... She moves independently in the apparatus to her thigh, with his hip capture.

Masha in her room photo: Oksana Yushko for TD

The main task for Masha is to maintain the ability to walk for the longest possible time, albeit at short distances, and not allow secondary complications - for example, dislocations of joints, and for this it is necessary to ensure the correct position in which Masha is located during the day. Masha also needs an active wheelchair for long distances. This will make it possible to reduce the load on the joints and maintain for a longer period the opportunity for Masha to go on short distances - for example, around the house. ”

While we are in the Kolbin house, Masha practically does not sit still. Apparently, the very opportunity to walk for her is so important that she walks all the time. Even in order to call one of the sisters from the second floor, Masha does not scream, although this would be enough, but almost running up the stairs.

Girls play in the room Nina and Sonya Photo: Oksana Yushko for TD Dima, Nikita, Masha after a Sunday walk photo: Oksana Yushko for TD

“Well, here she is, our Masha! - Oksana looks at the girl with tenderness. - And then there was a story with Sonya! Sonya was in another foster family, the mother of faith. She took Sonya in two years from the child’s house, and they lived here side by side. Our children went to mugs together, and then Mom Vera fell ill and died. Sonya was five years old. (I don’t remember anything about it, ”Sonya inserts, just passing by). At first we thought that someone would take her, there were relatives there, and then accidentally found out that she was in the shelter. “So, Sonya needs to be taken” - and we took. Sonya has a star - recently performed in the program "You - Super" on NTV, went to the second stage. Then Lenka was born, and I went to work, and on the first duty a woman gives birth to a girl-such a pretty girl was, it was something. I come home: "Zhenya, there is such a good girl!" - And dad says: “This is not our child, you understand, she is pretty, they will immediately take her!” I go for a week, two and I say: “I can’t! Let's go to the guardianship. ” We come, and they say to us: “The girl is already in the family. But you know, we have a boy, his grandfather died. ” Well, our dad says: “Wrap!” ”Oksana laughs. So the sixth adopted child appeared in the family - Andrey.

In December 2012, Eric and Sarah Peterson from Gainsville, Georgia, had already spent several days with their, as they thought, the future adoptive son

In 2015, a family of refugees from Donetsk arrived in Vyshny Volochek - parents with three children. Soon the house where they settled, burned down, the mother died in a fire, and the father, leaving the children, left. “Father even documented them,” recalls Oksana. - That is, they turned out to be orphans, so we were able to issue Russian citizenship to them. But as it happened with them - we had to go to Moscow, and at first their other family took, but not for long. Returned. Well, here it is definitely ours, it means. ” So Ala, Oleg and Nikita appeared in the Kolbin family - sister and brothers, children of the war for the “Russian world”.

Family of Kolbin photos: Oksana Yushko for TD Girls play in the room Nina and Sonya Photo: Oksana Yushko for TD

And Dima could leave for America. In December 2012, Eric and Sarah Peterson of Gainsville, Georgia, had already spent several days with their own, as they thought, with his future adoptive son and left to wait for the paperwork to pick up Dima and girl Arina from the same orphanage to the family. But on December 28, the State Duma of the Russian Federation adopted the "Law of Dima Yakovlev", and Dima Belyaev remained in the boarding school for another five years. Arina is still there.

“The latter we had Dima - two months ago, February 16. All these years he lived in a boarding school. Everything was very difficult there, we were asked to take him under guardianship. We said: “Well, maybe you will help us with an extension in the house, then we would have taken it to be where to live.” But our ministry said: “No, let them understand themselves,” and Dima remained in the boarding school. And a friend works there, and she constantly told me: "Oh, such a good boy is good." She dripped me and dripped me on the brain, ”Oksana laughs. “And at some point I thought:“ So, if she calls at least once, if she reminds me of him at least once, then we take him. ” And the next day she calls. Well, that means everything, we must take it. ”

Dima will most likely never be walking. But this does not prevent him from being very active

Dima also has his own help plan developed by the physical therapist and an ergotherapist of the SPINA Bifida charity program. Here's what the experts told us:

“Diagnosis-Spina Bifida of the Lighting and Cross region, an anomaly of Arnold-kiari of the second degree. Paralysis of the lower extremities, fourth -degree kyphoscoliosis, strong deformations of the joints - hip, knee and slightly ankle, common for children with Spina Bifida, impaired functions of the pelvic organs.

Dima has a stroller, but it is not adapted so that Dima himself can move, and this is very uncomfortable. Therefore, often Dima asks to the floor and moves with the help of hands. Oksana's mother says this violates communication, since Dima is at a different level of the photo: Oksana Yushko for TD

Dima’s back is so deformed that the ribs will soon come closer to the thigh. Dima will most likely never be walking. But this does not prevent him from being very active, to move around the house with a crawl with the help of hands. Unlike Masha, Dima has a very strong pedagogical neglect, which is caused by life in a boarding school for children with serious disorders in intellectual development.

Most of all now, Dima needs an operation to correct scoliosis. It is also important to buy the correct active stroller as soon as possible. Dima needs to move independently, be at the level of other children, and not look at the world, sitting on the floor. ”

Dima is a very affectionate child, and all children are good about him photo: Oksana Yushko for TD Dima bathes before bedtime photo: Oksana Yushko for TD

Oksana recalls: “When he only came to us, he was some kind of ambitious, but now he is already sitting down and crawling in his arms, even knows how to climb the stairs.” Dima is really very mobile and cleverly climbs the stairs. And very affectionate: "Let's kiss!" - says Dima and smacks on the cheek of everyone indiscriminately.

Now Evgeny is slowly expanding the living space-the salaries of the director of the medical school, the salaries of adoptive parents and children's benefits are enough to somehow put on, train and feed children and build an extension with their own hands-the boys also help in this. Oksana is already wondering how the children will settle when several more rooms appear in the house. From the following adoptive children, it is promoted, but, it seems, without much confidence.

In the new house, parents of Dima and Masha need to help with the arrangement of the environment in which children with Spina Bifida will live. It is necessary to make it convenient to move around the house in the stroller so that the furniture was the right level, to teach Dima to many skills of independent life. All this is also engaged in specialists of the Spina Bifida program.

The Spina Bifida project of the “Step” charitable foundation helps Masha, Dima and other children with Spina Bifida. Program specialists come to such children home, find places where you can do the right operations, and help with hospitalization, set goals for the child and develop a rehabilitation plan for the child.

Children with Spina Bifida in Russia are born one by a thousand. This is a lot. And help is always needed. Therefore, the “Need help” fund collects money for the salary of project employees who would organize the treatment of patients in need of intrauterine operations, home visitor and rehabilitation programs with the consequences of the spinal cerebral hernia, as well as teaching tutors so that children can go to kindergartens and schools. You can help right now - just donating any amount or by subscribing to a monthly donation.