Square meters for Angelina

The Moscow train stands in the city of Glazov for two minutes. The drives are in a hurry - to release those, to plant these. Two years ago, right on this low platform and laid fifteen -year -old Angelina, who came from Moscow after the next course of chemotherapy

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“The guards of the station came running, swearing, swearing,” recalls Olga, mother of Angelina. “Everyone was stunned on the train, but he went further, they unloaded - and all, they can’t do anything, I’m standing - neither alive nor dead ... And the“ ambulance ”, which was called in advance, did not come in advance.”

According to the Constitution, Russia is a social state. In a broad sense, this means that the country's policy is aimed at "creating conditions that ensure a worthy life of a person." In the narrow one - that a child with osteosarcoma, after “chemistry” and with an endoprosthesis just established on the asphalt, while his mother rushes nearby and sobs with powerlessness, trying to understand how to deliver him to the house. In order for this to be not there, special laws, rules and procedures are provided. Who do not work.

"Not alone live"

When Olga pronounces the word "benefits", Angelina frowns and grins under her breath:

- Enrages! ..

- What infuriates?

- What they say: "Here, they require these benefits!" As if I wanted it to happen to me! As if I had chosen it for myself!

"Enrages what they say:" Here, they require these benefits! " As if I wanted it to happen to me! "

Angelina fell ill in 2011. She fell at school, seemingly not a bruise, but began to fall on the leg, the lameness did not pass. The girl was not up to that, she defended the honor of the school - she played in the Handball team. "And defended!" - Angelina recalls the first place of her team with pleasure. The disease was diagnosed in a month, then nineteen courses of chemotherapy, several operations, installation of an endoprosthesis, rehabilitation and training to restore legs mobility.

Violetta, Olga and Angelina Photo: Evgenia Zhulanova/Schschi for TD Lunch photo: Evgenia Zhulanova/Schschi for TD

Now Angelina is very lame, but can walk without support, the crutches are pushed into a narrow gap behind the refrigerator. It was not possible to get a wheelchair laid down according to an individual rehabilitation program, and the walkers were provided in six months after the girl managed to get up and go. However, in a small room of the hostel where the family lives, the stroller is not only driving - it would not even turn out.

Olga, Angelina and her younger sister Violetta are sitting on a lilac sofa in a row. There is nowhere else, the channel room contains a computer table and a tiny dining table, a closet and a refrigerator, and does not imply a common kitchen for a block of five apartments. So the sofa is the center of life of the family. Guests are accepted on it, Violetta plays and draws on it, two thick gray cats are sitting on it. In the evening, the sofa is laid out and selected: sleep along or across. Everyone has different preferences, the ten -year -old Violetta loves when they sleep across:
“When we lie along, someone crushes me all the time! Or Angelina begins to fall! Or mom! Something we must happen! "

Olga says that now it is still much easier, not as in the year when Angelina constantly lay-on the same sofa: “You know, as they say-a sore spot attracts. You’ll go there - you’ll get off, turn - you will touch. And she screams in her voice because she hurts. "

A neighbor comes to screams and demands to behave quieter, says: “Not alone live!” She is generally an indifferent woman and monitors order. When Angelina could not get up yet, Olga washed her in the kitchen - there was no soul in a block for five rooms. The neighbor hissed: “We splash here, spoil the floor, arrange a mess. Interferes. "

Laws of the hostel

- Do you live here?

- I drink vodka here! - An elderly bearded man, sitting on the windowsill of the first floor of the hostel, is friendly demonstrating a bottle. - And now I’ll go to sleep!

View of the hostel where Angelina lives : Evgenia Zhulanova/Schschi for TD Violetta is naughty and says that he will live on a swing. But then he agrees to live another week with his mother and sister photo: Evgenia Zhulanova/Schschi for TD

He dwells in one gulp, throws his legs through the windowsill and climbs into the hole between the two sheets of plywood - there is no glass for a long time. In the courtyard, a drinking couple of middle -aged years swears, a man wants to return home, the woman offers first to sleep on the street. A dense mat is duddled up by a cartoon that Violetta is watching, the girl adds sound.

“We have a police or an ambulance every day,” says Olga. - But local alcoholics helped us to pull on the coverlet. The doctor comes to hospitalize her and says: “Come on, call your drunks until the morning, and they have not yet managed to accept!” ”

A room in a hostel on an international street - what they managed to buy for maternity capital, before that the family wandered around the rented apartments. Olga raises children herself, without assistants, and in her native village there is no work in principle. To get a job, write children in the garden and school, Olga was registered each time with friends, there is no free space on the pages of her passport. From the last rented apartment, the family was expelled when Angelina was already ill - while the girl was “chemical” in Moscow, the hostess threw things into the stairwell, changing her mind to rent an apartment.

Actually, the hostel is dilapidated, but as soon as a year ago the question arose of its resettlement, the city authorities slightly corrected the roof, led new pipes in some blocks and stopped counting it. A house with failed floors and crumbling walls will stand for a few decades.

Stupid bird

“When I came to ask about improving housing conditions, in our administration they advised me to recall popular wisdom,” Olga recalls. - That a smart bird first drives a nest, and then hatches eggs. Well, I say, then I'm a stupid bird. ”

Angelina photo: Evgenia Zhulanova/Schschi for TD Violetta photo: Evgenia Zhulanova/Schschi for TD

Olga did not even think to ask for anything, but at the next registration for treatment at the RONC named after N.N. Blokhina for Chemotherapy in Moscow was in surprise asked: "Why do you live in a hostel?"

“In general, I learned about all our benefits only in Moscow,” the woman says. - For example, what is supposed to be free to travel to the place of prescribed treatment, if it is not carried out in the hometown. That for families in which there is a child with disabilities, there is a tax deduction, there are pension benefits. When you come to local institutions with this, they say that they did not know, they forgot, such laws do not exist. Anything, just to do nothing. "

There is also a special law about housing for children with disabilities - if its disease is included in the list of severe forms of chronic diseases, if the child’s family is poor and shares housing with other families, separate housing should be provided.

"When you come with a conversation about benefits to local institutions, they say that they did not know, forgot, such laws do not exist"

Olga began to collect documents for improving housing conditions, but in the city administration she was laughed. They asked: "Do you want to live in mansions, or what?" City lawyers confirmed that the federal law involves the receipt of a separate housing for a disabled child, they will not sue with the city administration. And scary, and it makes no sense.

Olga is preparing lunch photos: Evgenia Zhulanova/Schschi for TD Violetta at the kitchen photo: Evgenia Zhulanova/Schschi for TD

While Olga tells, Violetta draws-she crawled off the sofa and sits on the floor in front of him, is still more convenient on hard. In the picture, a fat kitten can not reach the treats, “Kotheka’s dreams” are signed on top. The girl shows the drawing to her sister, Angelina asks what he is talking about.

“This picture,” Violetta says importantly, “will remind me that there is no need to throw my dreams if they are.”

Partial decision

“How many times have I lowered my hands! - says Olga. “I thought that that's enough, we only interfere with everyone.” Though take your children and go to die in the forest! And Svetlana Viktorovna calls me and calms me-you have to take such a paper, you need to check this seal, document the next refusal. ”

Violetta and Angelina Photo: Evgenia Zhulanova/Schschi for TD Olga in the kitchen photo: Evgenia Zhulanova/Schschi for TD

Svetlana Viktorovna Viktorova-a lawyer of the Patronus Children's Human Rights Project, she has been engaged in cases of providing housing for orphanages for many years. The topic is inexhaustible-then the orphan child will be allocated to the house burned to the house, then they will recognize the dilapidated Barak suitable for the life of a disabled child. There are hundreds of such cases in the country, because the authorities hates parted with square meters. Even if they are laid for children with disabilities according to the law, there are many ways to dispose of them more profitable.

There are hundreds of such things in the country, because the authorities hates to part with square meters

“It seems to me that they hope that we will simply die out,” says Olga. “Or we’ll get tired of walking with these pieces of paper.”

During the year of trial, the certificates were constantly lost, the press disappeared on the documents, the court delayed the case. As if I had checked - not get tired? Do not retreat? And if we offer a room in the same dormitory, hidden by alcoholics and homeless? And if we lose the desired certificate again? And if we just do nothing? "

Angelina independently learns to play the guitar photo: Evgenia Zhulanova/Schschi for TD Angelina photo: Evgenia Zhulanova/Schschi for TD

The lawyer of Patronus step by step went through this path with Olga - helped to write complaints about an inactive court, explained legislative norms, and applied to the deputies. In July last year, the Glazovsky District Court partially satisfied Olga's claims and decided "to ensure a minor child with a well -maintained apartment of at least 26 square meters."

According to the court, Angelina should live in her alone. A girl with disabilities, behind whom a mother takes care of for many years, in some magical way should be independent.

This summer, Angelina will do the next operation and adjust the children's endoprosthesis, and then one more - to change it to an adult. Two more times Angelina will first lie for a long time, and then learn to walk again. From the point of view of the law, it should do this alone - neither register nor “exercise the right of practical residence” her family with her cannot. This also saves precious square meters, because the area that the family of three should be provided with more than one Angelina is supposed.

System shift

There is no precedent law in Russia, and it is impossible to change housing legislation through specific decisions, even if the law is absurd. Even if it contradicts other legislative norms - according to the Convention on the Rights of the Child and our Family Code, every child has the right to live in his own family.

Through judicial practice, the law does not change, but it can be supplemented or changed if someone's rights are violated. This is a time -consuming and long business, but in the "patronus" they are sure that injustice can and should be corrected not only for specific people, but also systematically.

Angelina photo: Evgenia Zhulanova/Schschi for TD Angelina photo: Evgenia Zhulanova/Schschi for TD

Problems with preferential housing for children with disabilities are only one of the parties to the work of the project. The refusal to take a child with a disability to a school or a kindergarten, a refusal to treat or preferential medicines, a refusal to disability for a seriously ill child - the affairs of Patronus lawyers - hundreds. This is a daily and time-consuming work, and it will not be less, because the state is beating, and officials hope that everything will somehow be decided by itself.

Without our help, parents of children with disabilities will not have a person who will stand nearby and will help to achieve what is supposed to be by law. There will be no specialist who will force the state to fulfill its own obligations. “Patronus” needs your help - a regular donation will make it possible to protect the rights of many people who live very difficult. It will make it possible to move the system itself.
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