Come out for a walk, Temur!

In the first grade, Temur read the most accurate letters faster than anyone else. Then he clicked, then began to stutter. At 10, he found a brain tumor. At the age of 18, happiness for Temur is to stand on your feet for at least a few minutes

Help a house with a lighthouse help

Everything happened gradually. At first, Temur began to limp slightly, stutter a little. The neurologist said that it was okay, the MRI showed nothing. In the first grade, Temur studied well, but he walked worse. In the second, it became so difficult for him to walk that he remained at home education. The third and fourth finished in a correctional class. What was her son then, that he loved, what his voice was, Marina, Mom Temur, does not remember: “I tried to forget everything before. All details. Why do I need it? "

"Your child will die soon"

“They tell you that your child is inoperable, go home, he will die soon. And I saw, of course, that he was getting worse, but his mother always hopes for the best. I could not believe that he would not be. ” At 10 years old, Temur found a large tumor of the right front-and-out lobe of the brain. When Marina found out the diagnosis, she did not eat anything for a month and a half. From the Tushino children's hospital for chemotherapy, I had to move to Morozovskaya. And after the first chemotherapy, the doctor reports: the tumor decreased! Marina did not believe, she went several times checked with her own eyes MRI. True decreased!

“And I thought: how I want to eat! I remember this moment very well. The forces appeared to live on. I think: “Lord, I probably didn’t eat for almost a month. I didn’t eat anything!” You feel like Monte Cristo. Sticks instead of days. Here is chemotherapy with such and such a number. There are so many days left, so many days before leaving the hospital. And I crossed out these sticks in my mind. People came and left, and we lived there. You have no idea what kind of hell I went. In the ward lay four seriously ill children with their parents. Moms slept on the coters, looked after the children when they did not give a place for relatives. And in the evening we drank tea, laughed, laughed, so as not to go crazy. ”

"No one will ever understand me"

And when they returned home, they closed the door and almost did not leave the apartment for two years. It’s just very scary to walk with his son in a wheelchair in the courtyards where he ran - healthy, hardy and dexterous.

“He became completely lying, did not say anything, lay just with a layer.

I understood that I could not go to work anymore. It was difficult for me to communicate with friends. They began to ask - I started to cry. "

Temur in his room photo: Vasily Kolotilov for TD Temur photo: Vasily Kolotilov for TD

No one taught Marina how to handle his son now, when he was beautiful, courageous, ran and dangled nonsense, asked a million questions, annoyed and hooligan, and now he does not speak, does not walk, weighs thirty kilograms, and cannot even sit on the bed. How to feed him? How to understand whether it hurts or not? What is he afraid of? What does he want? How to plant it? After four courses of chemotherapy and a month in the radiological department of Temur, a ten -year -old little boy, became weak and helpless. Temur cannot swallow, and therefore he has a gastrostoma in his stomach, through it, with the help of a syringe, his mother feeds him with special nutrition. The grandmother of Temura, Mama Marina, had to be on the clock around the clock.

Over the years, Marina has learned a simple language of Temur. There are only four emotions. Smiles with the right corner of his lips - then he hears. Laughs loudly, hoarsely and stifled - it means happy. It turns away-something is wrong. Once Temur cried - Marina was scared, but did not understand what had happened to him. Friends and relatives in the first year went to visit Temur on the threshold, saw him and stood cried because they remembered him to others.

"Does anyone need us?"

Those who came to Temur and were not afraid, did not run away, became the workers of the children's hospice “House with a lighthouse”. They came to the family of Temur as rescuers - to save from loneliness, fear and home imprisonment.

Marina was able to go outside for the first time in three years - not with dashes to the store and vice versa, but for herself. “I remember the first time I went out, I didn’t even have to go anywhere. I went out and think: where to go? And the legs do not go. It was so strange for me that I could leave the child and go somewhere. ”

And Temur for the first time really bathed in the bath. The previous three years, due to the tube built into the stomach for power, was only wiped with a wet towel. And then a strong strong nanny Dima came, raised Temur in his arms and carried it to the bathroom.

Temur does not work with hands and there is no griping reflex. He sees only his right eye. His main toy is a tablet with cartoons and cinema. The last year, Temur was a non -stop listening to humorous programs. Now it's already tired. Temuru is 18 years old, he matured and began to listen to the conversations of girls-vulture. The most interesting thing is when they argue with each other - Temur listens to all ears.

Marina shifts Temura from a stroller to bed photo: Vasily Kolotilov for TD Temur with mom photo: Vasily Kolotilov for TD

A volunteer from a children's library comes to Temur and reads books on roles. The play therapist collects a wooden motorcycle with Temur. Nannies change diapers. The coordinator purchases medicines. The psychologist talks with Temur, and then, twice as long, with his mother. A massage volunteer makes Marina a massage to relax a torn back a little. And last summer Temur, together with the Hospice, went to the camp and swam there in the pool! The physical therapist came up with how to bathe for bedby children. Mom was shaking with fear, and Temur laughed.

- Well, Temur, we will dance? Will you rise? - Marina hugs her son and pulls up. - One, two, three, come on! - Temur is leaning on his mother, straightens to his full height and laughs. - Now sit down!

The fact that Temur can stand with support, relying on the whole foot, is Marina's pride. Temur learned to stand for almost three years.

- Temurka understands everything, but cannot say. He could say what he wants! What do you want, Temur?

Temur opens his mouth and wheezes almost silently in response.

Children's hospice “House with a lighthouse” helps Marina cope with grief. At least a little relax the spiritual and bodily clamp, which has been holding it tightly for almost ten years. Each of your donations will ensure the work of nannies, psychologist and coordinator of the children's hospice. So, Marina and Temur will not remain alone, alone with a terrible, devouring disease. Please arrange a regular donation. Temur's mother knows: her son really wants to live.

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