
“A rare genetic disease was found in a month in a month in a month. Now her height is only 125 centimeters, she is noticeably lower than her peers, ”says Tyzhova Masha Yezhova Tatyana. - Doctors could not choose an effective medicine for a long time, only in the spring of last year the daughter recommended the biosynthetic growth hormone “Norditropin Nordile”. And in eleven months, Masha grew by seven centimeters! ”
The drug is not included in the preferential list and is not provided for free. Last year, Taiga readers helped us. Info have already responded to a request to help Masha, but it is impossible to stop taking the drug, and the medicine ends.
The head of the city children's endocrinological center Oksana Pilipenko notes positive dynamics against the background of taking the drug: “The girl needs to continue therapy with a growth hormone for at least a year - she will help normalize growth and physical development.”
Masha’s parents cannot buy the drug: “We are not affected, it costs it expensive. We have three children, our salaries with my husband are barely enough for life, ”explains Tatyana Yezhova.
The price of the medicine is 233,275 rubles. 41 thousand have already been collected, there are not enough 192 thousand rubles, so any donation will be accepted with gratitude. All translation methods are indicated on the Masha page on the Rusfond website.
Taiga.info is the information partner of Rusfond in Novosibirsk.