Unbearable

Sima could die at birth and not survive after clinical death at three years. But she is alive - her mother is fighting for it every day. Even when it is unbearably hard

We help professional nannies to help families with deaf -blind children collected 1 199 887 R needed 976,625 r

The collection of funds is over

“First, the hand climbed. The midwife came and somehow put her back. They had to do a cesarean or at least turn it over so that she would not go sideways. They did nothing of this. The stimulants began to stab, and then I don’t remember anything. ” When Catherine woke up, there was no one around. The head was spinning in pain and horror. After some time, the nurse appeared: “Didn’t they tell you? Well, the doctor will come and say. ”

The doctor did not come, and Catherine went to look for her daughter. But when I found it, it became even worse: “A huge curved head, the legs are flattened, like a frog, and do not move. But this unfortunate creature immediately grabbed me with its pen by the finger, and I realized: yes, this is my daughter. ”

During the birth, the sim was extracted with forceps, says Catherine: they broke her a parietal bone of the skull and spine. The small pelvic organs were damaged by Catherine.

Ekaterina and Seraphim photo: Lesya Polyakova for TD

“Leave her why you need this, it will not survive, ” the doctor told me for three days. But I could not. I will not survive - I will bury and faint, but at home. But I will never leave it to them. ”

And took the sim home.

My war

Sima is the fifth child in the family of Catherine and Michael. They met an ambulance: he is a psychiatrist, she is an ambulance paramedic. She always wanted a large family, like her grandmother, and gave birth to Sasha, Dasha, Masha, Katya. And then, ten years after Katya, Simu. On the ultrasound to the last, everything was fine, and the sim should have been born healthy and beautiful, like previous daughters. But no.

“She did not cry, she ate almost nothing, the lower part of her body did not move, ” recalls Catherine. - But in the fifth month she said: “Mom.” And since then I spoke. We carried her on rehabilitation and doctors, with the whole family we made massages. The elders did not leave her. In a year, the skull began to deform even more - the bones fused incorrectly, not allowing the brain to grow and squeezing it, his face began to swim back and sideways, his forehead was protruding forward. A terrible picture. I found out everything that I could, and realized that I needed an operation on the skull to expand the bones. But no one wanted to take it for it. ”

Doctors persuaded to wait until three years and then do the operation. Meanwhile, Sima slowly began to crawl, and then walk, holding onto the wall. The weak physically, mentally, it developed much faster than the norm. She already spoke a year, but in two counted. But later she began to rapidly lose their skills - to forget words, movements. Constantly squeezed her head with her hands and screamed, she rolled all the time. Catherine realized that it was no longer possible to wait.

“A doctor who spoke to wait up to three years has abandoned us again. I begged, said that the child was dying, promised to collect any money, but no. We had no special connections, we are not such doctors. As a result, one professor agreed to operate. ”

Seraphim photo: Lesya Polyakova for TD

Everything went bad for the operation. When they made a trepanation of the skull, the brain ventricles touched and damaged the vessels of the brain. Sima's heart stopped. He managed to restart it, the surgeons inserted the plate along the skull, which was supposed to interfere with the bones to squeeze the brain and then resolve it itself. They collected money on the plate with the whole family - they scored loans, borrowed from friends. The sim was discharged, but it got worse.

“At the age of 20, after a medical school, I gathered in Kabul - I wanted to be a front -line paramedic, to save the wounded, ” recalls Catherine. - It was 1986, the war in Afghanistan was still going on. We had a set, and until the last I did not tell my parents. But in the end, my father recognized and said: “Through my corpse.” And I did not go. Instead, she got married. Why did I want to war so much? And did I know that I had a real war ahead? "

Doctors in the face and behind them unanimously said that they did not know what to do with Sima. Two months after the operation, the child had a stroke. The whole right half of the body refused, the girl stopped talking, began to lose sight and hearing. Catherine began to write to foreign clinics, carry the sim in the sanatorium.

And then the answer came to one of the letters: the clinic in Germany invited them for examination. Through the funds they collected money and went. Catherine recalls: on the spot it turned out that instead of a self -absorbing plate, doctors put cheap, from toxic material, which poisoned the whole body of the child. But changing it, according to the Germans, was even more dangerous than leaving. Sima also diagnosed deafness of the fourth degree.

With these news, mother and Sima returned home.

"She feels everything"

Now Sime 12. She has a younger brother Misha, he is 10.

“I became pregnant, it so happened, and decided to give birth to a friend of a friend. Still, the elders are already completely older, and here she would have almost a peer. At least some joy to her. "

After that operation, Sima already had eight ischemic strokes. She does not speak at all, almost does not walk, hears very badly and only in the hearing aids, she sees weakly and only objects in the center. He communicates with mooing or cards - although mom, of course, understands her without words.

Seraphim and Misha photo: Lesi Polyakova for TD

“She loves music very much, especially the Italian opera. And she feels everything. When my mother first died last year - from a stroke, and then dad - from a heart attack, she knew for sure what happened, although she was not there. ”

The sim cannot be left for a minute - until recently, Catherine did not leave her daughter either day or night. If it was necessary to go somewhere, took her with her on a bus or in the subway - the family does not have a car. Catherine asthma and back pain, and sometimes you need to the clinic or manual therapist. It’s not easy with Sima - the girl is afraid of noise and crowds.

Divination

But recently, Catherine had help. The community of the families of the deaf -blind open opened the program “Divination”, within the framework of which it provides professional nannies so that parents can at least temporarily go about their business. Once a week, a nanny comes to Catherine and lets it go for eight hours. The nanny lives nearby and has recently taken the sim to her. She knows Sima well, her features and needs. Catherine trusts her as herself: “I have no words to describe what invaluable help it is. I can calmly go to the doctor, without pushing her in the subway and not apologizing if she has another seizure. Sima is very loud, and sometimes the homemade also get tired. Now the husband is sick and can rest in silence a day a week. ”

Ekaterina and Seraphim photo: Lesya Polyakova for TD

A few years ago, Mikhail, the husband of Catherine, found a lymphoma. Chemotherapy courses and drugs that have gone the last money helped. But recently, he developed Parkinson's disease. So far, he works three times a week in the clinic, because he needs money, but already with all his strength. As Catherine copes with everything, it is impossible to imagine.

Even in Germany, doctors asked why she did not sue the hospital first, then for surgeons of the hospital. Catherine answered: she wanted to, but familiar doctors dissuaded - they say, you can’t cope, the forces are not equal.

"And will it return her?" - Sighs Catherine.

She does not complain about anything and does not blame anyone, but I am very glad that there is a fund that has been resting a little once a week for the third year.

The program "Divide" exists on our donations. It is necessary a little less than a million rubles - for this money 50 families in Moscow and the Moscow Region will be able to receive help from professional nannies within a year.

Please arrange a small monthly donation to the work of the program. The money, which you hardly notice, will turn into real help to families who are so unbearably difficult.