Olya is still breathing

Elena Zyablova and her daughter Olya lived in Altai, in the small city of Zmeinogorsk, similar to the village. Old house. A small garden. Cats. Ordinary life. They thought it would always be so, but six months ago they had to lock the house and go to Moscow, because Olya stopped breathing

Help a house with a lighthouse help

Old odnushka in Izmailov. Dull light, old repair, old furniture. On the floor of the wires. In the corridor, the IVL apparatus is buzzing, the sounds are loud, terrible, they can’t even be saved from them even behind the closed door.

While Olya could, she went to school. When they learned about the dimming in the lungs, Olya was sent to a tuberculosis hospital. After that, the teacher at the school considered Olly a contagious and even drove off the lesson when she greatly coughed the photo: Maria Ionova-Garbin for TD

A woman with a tired tearful face gives me a hand - this is Elena. And in the depths of the room, a thin girl with an oxygen mask on her face - Olya greets her eyes.

"Take your daughter, she coughs"

“Olya, the rectum began to fall out of Olya. It will sit on the pot and directly burgundy, like beets ... - Elena is trying to shout out the Ivl apparatus. - Doctors said: weak muscles, we must strengthen. Do not sit on a pot, sit on a newspaper, buy a bicycle ... We did all this, and by the age of two years. But she was sick all the time, SARS, ARS. I reduced the walks to a minimum, I did not help. Then there was pneumonia. Intestinal disorders. Then, already at school, she began to lose weight. She was worried about this, cried. "

Altai doctors did not immediately figure out that Olya has cystic fibrosis (a genetic disease that affects the mucous membranes and internal organs, primarily the lungs, which over time cease to cope with their main task - to breathe). Mom spent almost all family money on drugs for Olya. This enraged her husband, who regularly drank. He was all annoyed: “sour olina mrying”, her cough, the need to give money for treatment. Once he told Elena that he could no longer live like that. He left early in the morning, while everyone was sleeping, and never returned. With Olya and her cystic fibrosis, Elena was left alone. And it is not very clear how she did not go crazy.

Olya Medicines : Maria Ionova-Garbin for TD Recently, Ole was presented with a dog photo: Maria Ionova-Garbin for TD

While there were strength, Olya studied. Cycassocidosis gradually takes the strength and the ability to breathe. Every year Olya became worse and weaker, often coughed, she was poisoned at school. Teachers kept calling Elena every now and then and said: “Take your daughter, she coughs and interferes with leading a lesson!” There was constantly no money - a meager salary went to medicines. The people on the street whisked right Elena in the face. And when she took her daughter in a stroller outside, they approached and looked without hesitation, like an animal in a zoo.

Once Elena gathered clean socks in a stack to put in a closet. I went to the refrigerator, opened the door - and in the refrigerator products, banks - there is no place. I got angry so that my hands shook. And only then she realized that with a mountain of socks is not in front of the closet. “I was already so tired of grief then that I sometimes forgot where I am and what I was doing. And now I sometimes talk, forget elementary things. I’m afraid to say something once again so that I would not be accepted for a fool here, in Moscow. ”

"Herring!"

It’s hard to speak through a mask. She exhales words about her life, stammering on the semi -fraud.

“Teachers were constantly asked to go out, cough, and then return to the classroom,” Olya exhales. - I often had to go out, I missed the lessons, and I put three three. It was very disappointing. Because of this, I had to go to home schooling. I finished up to the ninth grade, and then there was neither strength nor meaning. ”

“So many bad memories are connected with this school,” says Elena. - Olya often came home tearful because she was teased. She was very thin then, her arms, her legs are thin. He was terribly shy. "

“Classmates called on:“ Shit on batteries, herring! ” - Olya continues to exhale with tears. Tears flow under the mask, she awkwardly wipes them with transparent fingers. - The girls have a chest in the locker room, but I have nothing. They laughed ... My things were thrown away from the desks, pushed, put the steps. They could take some thing from someone and put it in my briefcase, and then shouted that I stole. I was afraid to go out of the desk at the breaks. Everyone walks, play, and I sit quietly ... Sometimes, if the lesson was on the third floor, I went first, away. And she returned to the class when the call rang and everyone was already sitting. I had only one girlfriend at school, she stood up for me, and the teachers did nothing with this.

Olya and her mother Lena Photo: Maria Ionova-Garbin for TD

Once the teacher opened the window near me, but I can’t be in a draft at all, I immediately catch a cold. I asked for permission to transfer. She did not allow, but I still moved. And let's yell: “I didn’t give you permission, you’ll sit where I say!” ”Tears from the Olya eyes flow again with a stream, she breathes intermittently and silent.

And when he calms down, he talks about dad.

“Dad drank strongly. I fought with my mother ... I remember before we went to the hospital in Tomsk, I asked him not to drink, and he promised. When we returned, he was drunk. And I did not talk to him. And the next day he just took and left. And he did not return. And that's it. "

“Dad never loved her,” says Elena. - He watched the TV all the time, and she approached, went to his knees with his head, and he was zero attention. I see this from the kitchen, show him, they say, to stole my daughter. He will squeamishly stroke a couple of times like a cat, and he looks further into the TV ... And she wanted love. ”

"To Moscow!"

One morning, after the 17th birthday, Olya could not breathe. While she was in the hospital under oxygen, Elena tried to go to Moscow doctors, because the Altai could not help. Friends suggested who to write, and soon Ole and mother sent a call for treatment to the capital. Haster to throw things and oxygen pillows into the bag, Elena went with Olya by train. There were few oxygen pillows, and Ole needed to breathe. “You have to save oxygen for a child, you can imagine! - says Elena and herself almost does not breathe from tears. “I let her breathe only when she was already completely suffocating.” Somehow we reached the hospital, where Olya was pumped out. And they said that she has only one chance of survival: lung transplantation. And in order to transplant them, you need to gain weight, from 25 kilograms to at least to 35. And be under the supervision of doctors in Moscow. And breathe through the device IVL, which cannot be turned off. In general, you have to stay. So Elena, Olya and her younger brother Kiryusha settled in a huge alien Moscow for an indefinite time - without things, money, close, but under the supervision of the Oxygen and House with a Lighthouse - they would simply not be able to stay here without their help.

Ole measure the pulse and oxygen in the blood after shortness of breath appeared and it became bad. This happens several times a day photo: Maria Ionova-Gribin for TD Olya Medicines : Maria Ionova-Garbin for TD

For six months that Olya lives in Moscow and tries to gain weight, she never went outside. Firstly, she is not good all the time. He is sick, her stomach hurts, she can even sleep, only sitting on the pillow, because if you sleep lying, the bones hurt - Olya does not have a fat layer. Adds torment of gastrostoma through which Olya eats. And an oxygen mask with which is calmer, but terribly inconvenient.

“I really want to see Moscow,” Olya says. - Zoo, parks, oceanarium. I want everywhere! But I don't want to. I do not want to go outside in a mask to roll me in a stroller. I want to walk myself! "

“We somehow tried her with a nurse to take it out into the street, so she shouted, I won’t go, and that’s it! - says Elena. -Once I asked me to bring the autumn. I collected and roared. "

Unlike Olya, Elena runs somewhere all the time. Either in the hospital, then to the pharmacy, then to the school (trying to attach Kiryusha, who has missed several months), then to officials. She wants to sleep all the time, her eyes close immediately, you just have to sit down. But you can’t sleep, because Olya needs to be constantly looked at, even at night. They sleep together, through rare dreams Elena hears her daughter breathing. Only breathing will flow, she jumps. More than anything else, Elena is afraid that Olya will die without waiting for a chance to escape.

Olya is watching TV. Due to the fact that Olya is weak, she cannot walk, the whole of Olina is a wide bed, Olya is sleeping there, and the photo lives: Maria Ionova-Garbin for TD

A lonely woman, completely lost in her daughter’s illness, is difficult without the support of loved ones. And when I ask if there is someone in Moscow who hugs her, she shakes her head negatively. He recalls how one day an unfamiliar woman approached her in the hospital and hugged her silently. “It was so warm, as if my mother hugged me, I didn’t want her to let go of her hands ...” It was only one once, but Elena still remembers the warmth of those embrace.

“If God said:“ Here you will die now, but she will live, ”I would not even think,” says Elena. “I will go crazy if something happens to Olya.” Sometimes they tell me that I am a hero. It shocks me from these words. Yes, I'm very tired, very, but what is the hero? Did I save a child of a stranger or did something supernatural? Try on yourself. You will do everything for your child, you will shout about troubles all over the world .... So I'm the most ordinary. ”

"We are safe"

And yet, despite fatigue, fears and uncertainty, in Moscow Elena and Ole are better, because they are now under the supervision of the “House with a Lighthouse” fund, which has a program for helping young adults. All that is in their rented apartment brought charity funds. Blankets, clothes, medicines, consumables, oxygen pillows, Ivl apparatus. A doctor and psychologist from the hospice regularly go to their home. They bring products. They are no more.

Olya says that she does not like to draw and sculpt, she can’t, and therefore do not like it. But weaving from beads it turns out, and therefore I like it. Recently, Olya even had orders photo: Maria Ionova-Garbin for TD Olya Medicines : Maria Ionova-Garbin for TD

“They made my life so easier for me! There it was necessary to somehow earn money, without leaving the child without supervision, go to hospitals, knock out medicines, chop firewood ... And then they rented an apartment, bring medicines and things ... I feel safe here. ”

Olya and Elena believe that everything will be fine. That Olya will get stronger, that the transplanting of the lungs will take place and the human life will begin. In it it will be possible to walk in the parks, start dogs, wear your favorite clothes, which now hangs with a bag, fall in love, paint your eyes and lips, breathe without a mask and there is no fear that your stomach is sick.

Until the age of eight, no one knew and did not suspect the disease. After all, she grew up with an ordinary child, without special health problems. She was very thin, added little, but everyone believed that in her mother, mother Olya was a thin in her youth. And the doctors never noticed anything. Olya was often sick, but many children often get a lot of photos: Maria Ionova-Garbin for TD

Their faith is strengthened by the support of the “house with a lighthouse”, but the fund itself also needs support - ours with you. “House with a lighthouse” lives on donations that converts into good deeds. Everything that the fund gives Elena and Olya became possible thanks to you, ordinary people. Just think: you sacrifice a hundred rubles with one click of the button, and somewhere in Izmailovo a doctor with a set of medicines is knocking on a tired tearful woman, and the woman exhales. And her daughter is still breathing. So that this miracle will continue to happen, subscribe to a monthly donation for the House with a Lighthouse fund. Thank you!

Olya stopped breathing at night, May 12, 2020. The disease, alas, took her. Your help and support turned out to be very valuable to her and her family - mother and younger brother Cyril.