Translated material
Time to return home
Masha and her mother have been living in tiny boxing three by three meters for a year now. Removing a mask or opening a window is deadly. But both believe that deliverance is close
Helping not to help“Maria is conscientious, responsible, sociable, neat, balanced, courteous, very organized girl, has leadership qualities, knows how to assess the situation and perform deliberate actions.”
So it is written in the school characteristic, and now the ten -year -old Maria is sitting on the bed with diligently painted arrows in her eyes, a rim with feline ears on a short -cut head and a drop of a dropper sticking out of the hand. A New Year's decor hangs on the dropper, but it does not look more fun. From time to time, Masha herself deftly and habitually changes the speed of admission to her vein. If it pours too slowly - the exhausted veins hurt, too fast - he is very sick.
In boxing, where Masha and her mother live for months, the order is in the space of three by three meters there is simply nowhere to scatter things. It is very difficult to breathe in a mask, but you can’t remove it or open the window: Masha undergoes a course of high -dose chemotherapy after the next relapse of acute lymphobia leukemia and it is deadly for it.
The "sociable Maria" is silent and looks out the window, at the courtyard of the Ufa Republican Children's Clinical Hospital.
Three by three meters
An inexpensive domestic machine stops on the passage in front of the barrier. In the back window you can see a tearful female face and pale children. The father goes to negotiate traveling and slamms the door with force, and then without need - again. He looks angry and frightened at the same time. They don’t ride here with anything.
Masha photo: Vadim Brydov for TD“This is a heavy department, and I will not miss you,” the doctor on duty says firmly. “I will not let Mashenka be tired.”
After she made sure that the attending physician allowed, Masha and her mother do not mind talking to reporters, and we agree to put on complete uniforms from the robe that covers the neck of the shirt and hats, they still allow me to pass.
- You have hard work! - the doctor speaks sympathetically, escorting us to the ward.
- Do you have light?
In response, the doctor laughs:
- No, but beloved.
She knows every child and his mother in the department by name, easily pronounces kilometers of complex names of diagnoses and tests.
Masha looks out the window and does not really want to talk. And mom lists an endless series of events over the past year. There are few joyful among them. The leg fell ill, then stronger, they did not accept the local rural hospital, then they took it, but did not consider it serious: it hurts and hurts, age, bruised, you never know. A few days later, the family nevertheless achieved a thoughtful inspection. They brought to Ufa, to the RDKB. Diagnosed with leukemia.
Outside the window is high February snowdrifts. Masha and her mother in the RDKB since March of the past, 2019. Highly treated chemotherapy, remission. Relapse, chemistry, remission. Four blocks of highly treated therapy. Examination in the federal center for bone marrow transplantation. Relapse. The donor did not fit.
"The donor did not fit!" - On these words, the machine mom goes astray from a clear and constructive tone, raises her eyes and frantically inhales the air. "Ma-ah!" - For the first time, Masha quietly inserts. A woman smiles with an effort and continues. Another chemistry. Another relapse. Another remission, and constant supporting chemotherapy. Waiting for a call for immune therapy. Months and months in a block of three by three meters.
"What are my options?"
The village of Red Key is one of the most beautiful in Bashkortostan. This can be seen even now, when the sky and snow merge into a homogeneous gray veil. The bend of the river, houses stuck in the mountains, tall pines. In one of them, almost a door to the door with a local school, a family lives. Mom teaches a foreign language, grandmother works at a music school on the second floor of the same building, grandfather - a guard, aunt is also a teacher.
Masha photo: Vadim Brydov for TD"That is, from all sides was overlaid!" - Masha says quietly. He and his mother laugh, and their laughter is exactly the same. Masha studies well, "because what are my options?!" -The girl commented sarcastically, not forgetting to proudly note the only two in behavior,-nevertheless, a gentle related control managed to get around. He goes to the theater circle, plays the piano. On the proposal to transfer the synthesizer to her in the ward, she smiles a second time in an hour and replies that he will be glad.
The girl finally talked, and she and her mother vied with vocepage recall ridiculous cases and habits from that past life. Of the artist and music by Masha, the art school likes the art school, but from the grandmother, the teacher of the music school, this is mercifully hid. Masha loves to draw landscapes. “People can see themselves differently than I see them, and they will upset,” the girl notes. “And in nature I can add my own as I want.” Masha is also looking at Utub, there she likes the draws and pranks. They laugh again with their mother: they recall how the girl played a dad working according to strict graphics, convincing him that he slept.
Masha walks - she walked - on skiing. Actually, the whole family is fond of this sport, but so far there are no “his girls” in the red man, the dad does not go skiing. Work - to pick up the younger sister Masha from the kindergarten - the house - work, trips to Ufa, to the hospital, kilometers of chats and calls.
Last winter, Masha, mom and dad went skiing and argued on the hill.
- Dad said that you need to slide off the hill, and mom - that you need to go further, upstairs. Mom started the rise, dad rolled up ...
- And you?
- And I took off my skis and went home! - Masha even squints with pleasure. - They come, frozen, tired, and I drink the third cup of tea with a cookie!
***
Masha photo: Vadim Brydov for TDIn order for Masha to go home, you need to do much more. A little later, Masha’s mother to the question of the prospects, which I did not dare to ask a girl, writes to me: “The goal is set, the tasks are outlined, there is desire and desire, only forward! To do this, we need to go through all the stages of treatment, achieve a stable remission, successfully undergo air conditioning, withstand the bone marrow transplantation itself, and then recover and live a full life! ”
The car family does not believe in a different outcome for a second and does everything possible for this. The question is that, no matter how the whole family work in their public services, there is still not enough money for difficult tests. The Losses NO Foundation have already paid for Masha immunophenotyping of the cytogenetic, molecular genetic, cytological study of bone marrow. In addition to Masha, in the Ufa RDKB dozens of children - wards of the fund. Doctors do everything in their power, and “no losses” helps with complex analyzes, he also agrees and organizes consultations for children in federal medical centers.
In order not to limit this assistance, not to choose from those who need it, not to reduce the number of wards, the Foundation “There are no losses”, in turn, we need our help. Fifty rubles, which you will sign, will be written off from your card once a month and another analysis will be made of them. Of the hundred rubles from everyone who wants to help, gather on an important study.
Please help. So that the children go home.