Translated material
"Everything that doctors recommend to parents is to buy a little coffin"
An open letter to the “new” President of Russia and the Crown Prince of Saudi Arabia: please save Ilya Rozhkovsky
Dear President Vladimir Putin
Your Highness Crown Prince Muhammad Bin Salman Al Saud, Prime Minister of the Kingdom of Saudi Arabia
Only extreme circumstances make us turn to you at that moment when the whole world froze in the face of a formidable test, when the care of the governments of each of the countries is the salvation of our own people. But the matter concerns children's lives, and it does not tolerate.
The boy in this photo is the name of Ilyusha, he lives in a small city in the south of Russia, and two weeks later he will be two years old. Ilyusha has a rarest disease - spinal muscle atrophy. Slowly paralyzing his body, this disease soon immobilizes the respiratory muscles, and then Ilyusha will die.
He will experience all this in full consciousness, because this disease does not affect this disease.
Ilyusha can save only one injection of the drug Zolgensma. If you have time to make this injection until the boy is two years old, the disease will stop. However, one dose of Zolgensma costs $ 2.1 million, this is the most expensive medicine in the world, and the Russian state does not purchase it. All that doctors recommend to the parents of Ilyusha is to prepare a small coffin, as well as give birth to another child, healthy.
Ilyusha says well, he understands what is happening to him. He strokes his weakening legs and persuades them:
"Do not cry, legs, do not cry."
In total, about 150 children need this medicine in our country. And now, when you read these lines, one of these kids is suffocating.
For a long time, the New Gazeta is beating for the salvation of these children. Our readers collected money for Zolgensma medicine, and several children have already managed to get it. Unfortunately, the Russian state turned out to be powerless before this misfortune. All the answers that we received from the official departments come down to the fact that Russia cannot afford the treatment of such children.
The events of the last month inflicted a crushing blow to our work: the oil duel between Russia and Saudi Arabia brought the ruble, and the medicine, which was already worth unthinkable, became even more for Russians. Coronavirus did his job: the whole Russian economy has froze, we cannot further ask for money from our readers or representatives of Russian business.
Having reached the edge of despair, we turn to you.
You are the leaders of rich countries, politicians who can turn over all the logic of the global economy. And today you are those people who can take the first step in the new world order.
The test that our planet takes place these days present a great lesson to all of us: the war of vanity is a thing of the past. Today, generosity enters the stage. Greatness and willingness to come to the aid of yesterday's political opponent. The willingness to put a person above politics.
Humanism is the real international policy of tomorrow.
We ask you to save Ilyusha.
Arabic
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English
Dear Mr. President
Vladimir putin
YOUR HIGHNESS,
Crown Prince
Mohammad Bin Salman Al Saud,
Prime minister of saudi Arabia,Only Extreme Circumstances have forced us tot you in this Moment, when the entire world is facing tremendous challenge and when the priority of all Governments is to Save Their Own People.
However, this issue is about the lives of children and can not be Stalled.
The Child in this Photography Is Called Ilyusha, He Lives in a Small Town in South Russia and Two Weeks now He Will Turn Two. Ilyusha Has a Very Rare Illness: Spinal Muscular Atrophy. The Illness IS Slowly Paralyzing His Body, and Soon It Willize His Respiratory Muscles and the Ilyusha Will Die.
This Will Happen to Him While He is Full Conscious Because The Illness Does Not Affect His Brain.
Ilyusha Can Be Saved by One Injection of Zolgensma Medicine. If the Inject IS Adminated Before The Child Turns Two, The Illness Will Stop.
However, One Doze of Zolgensma Costs 2.1 Million Us Dollars, this is the Most Expensave Medicine in the World and the Russian Government Does Not Buy it. All the Doctors Can Recommod Ilyusha's Parents Is to Prepare a Small Coffin and Give Birth to Another, Healthy Child.
Ilyusha Alread Speaks Well and He Understands What is Happening to Him. He is Caressing His Weakening Legs and Telling them “Donat Cry, Little Legs, Don`t Cry”.
Overall, in Russia ABOUT 150 Children Need This Medication. And Now While You Read these Lines Some of these Little One Suffocation.
Novaya Gazeta Has for a Long Time Been Struging to Save the Kids. OUR Readers have Raid Money for Zolgensma Medicine, and Some Children Manged to get it. UNFORTUNATELY, The Russian State Turned Out to Be Powerless in the Face of this Problem.
All Official Responses Given to US Official Administrations Indicate That Russia Cannot Afferd Things Children.
The Events of the Last Month Have Formed a Strong Blow to Our Work: The Oil Duel Between Russia and Saudi Arabia Has Sent the Ruble Craining Down and the Medicine toes Expensive Has Become Even More Expensive For Russian Citizens.
Coronavirus HAS HAD Its Own Contribution: The Russian Economy Is Frozen; We are Unable to Continue Asking Donations from OUR Readers Or from the Russian Businesses.
We are desperately Turning to You. You are the Leaders of Rich Countries, Politicians that are capable of Changing the Logic of the World Economy. Today you are also the passons Who can make the First STEP Towards The New World Order. The Challenge that Planet Is Facing Today Teaches Us One Lesson: Vanity War Is a Thing of the Past. Generosity Enters the Stage. Geneerosity and Readiness to Come to the Aid of Aid of aid of aid Political Opponent and to Place the Human Being ABOVE Politics.
Being Humane Is the International Politics of Tomorrow.
We ask you to play ilyusha's life.