A chance for Nikita

He is not a whiner and tries to hold on. There are opportunities for a saving operation, but there is not enough money

In July last year, the Give Life Foundation was forced to close the program for the foreign treatment of children. The reasons are obvious - the resources of the fund, even such a large and authoritative, are limited. On the fund’s website you can read: “We used to pay foreign treatment only in the most rare cases when such therapy could not be carried out in Russia. But now we have to completely suspend the program. It is incredibly difficult to do, but so far there is no other way out of the Life Foundation - we lack the volume of charity donations that we have now. ”

Julia Tereshchenkova learned this this September, and the hope that it would be possible to raise money for the son of Nikita for treatment in Germany was bored and became almost unrealistic. Nikita has acute myeloblastic leukemia. In February, in the clinic of Raisa Gorbacheva, they made a bone marrow transplant from the pope. Dad “coincided” with Nikita by 50%. And this gave a chance.

The chances let down - a relapse happened in May, the condition worsened sharply. Now Nikita is holding on supporting therapy, the only chance to save his life is to make a transplant from a 100% compatible donor. Better as fast as possible. In Russia now it is impossible to do this immediately. This is shortly.

And if a little more, then their life looks like a slow fall into the abyss, at the bottom of which it is even scary to look.

Julia in our conversation on the phone often pauses - tears interfere with her, and she apologizes all the time. And I need to learn more about her about her son, for whom in the country the victorious zero, and in general everyone and everything that won, except for the total insecurity of his people, there is no chance of being treated at home. There are no chances not only because Nikita is a very rare patient, but also because in Russia an extremely small register of bone marrow donors, and finding the chances of “its” are still insignificant, and these chances are many times higher abroad. Well, the cost of this service, respectively, too.

The other day, from the German clinic in Weisburg, the answer came that they were ready to take Nikita to transplant bone marrow and rehabilitation. The price of the issue is 40 million rubles. Unreal for Tereshchenko money. Now they live like this: they moved out of the room in a communal apartment in St. Petersburg, to which they took a mortgage for 10 years and lived until their son’s illness, rented a three -room apartment near the hospital, in which Nikita was transported daily to the day hospital. A three -room apartment is not a luxury, but a necessity: Nikita needs an isolated room and sterile conditions, another room - for his brother, six -year -old Artem, who, from the very beginning of Nikita’s illness, was sent to live with his grandmother because they were afraid that the topic, God forbid, would bring the virus from the kindergarten to their room in the communal apartment. But living in separation from the youngest son Tereshchenkov became completely impossible. Dad works as a driver, mom does not work because Nikita needs it.

Julia speaks for a long time, and I do not interrupt.

- You know, Nikita is not a whiner, he is a very strong -willed and positive boy. He said, if necessary, I will stand everything that is needed. He only burst into tears once when he had a sepsis and a temperature of forty. He called me at night from the resuscitation: "Mommy, when will you come?" I fought to him, but they said that he was already big and could lie down myself. But when it became very bad, we let us down, and we lay together for another two months. Now he has a very shaky improvement, which lasts only one drug. If you cancel it, then everything will collapse ... Forty million is a cosmic amount. Is it true? I believe and do not believe that it can be assembled. We ourselves collected only two million. How? People help. The volunteers helped create a VKontakte group, and even if each 100 rubles is dropped, this is also help. The girl alone is engaged in painting T -shirts and part of the revenue transfers to his account. There are also girls, they are engaged in needlework and painting nesting dolls, and also transmit the revenue for Nikita. My husband and I come from Smolensk. One Smolensk fitness club held a action and transferred to us 15 thousand. I am very grateful to people. We have no accumulations. We pay a mortgage for a room in a communal apartment, for a rented apartment, for patching for a catheter Nikita, we cope, but on the end.

Nikita was very matured during this time. When a relapse happened, the doctor told him everything in the forehead, without warning me.

And he told me that he is already an adult and should know his risks. Nikita and I are now holding on to each other, in turn we substitute the shoulder. Dad is constantly at work, he cannot meet with friends because of weakened immunity. I am the only girlfriend to him. Sometimes we go out to the park, but he gets tired quickly. Any little things from the past, healthy life are happy. What is this? These are pasta with cheese. He cannot be cheese, and I very rarely violate this rule. What do I want? .. Yes, I don’t want anything ... I want my boy to live, I want him to have simple teenage happiness. Even if he tries to smoke, you need to try this, right? I want to be friends with girls, with boys ... I want ordinary life.

How to help

Non -profit fund "General cultural property":

Komi Branch No. 8617 PJSC Sberbank, Syktyvkar

R/account 407 038 103 280 000 978 51

K/account 301 018 104 000 000 006 40

to the department-NB, the Republic of Komi.

BIC 048702640

OGRN 1131100000580

KPP 110101001

TIN 1101990934

Marking: "For the treatment of Nikita Tereshchenkova"