Marina drowned

Marina is nineteen. Eleven years ago, she drowned. Marina is still alive, but her life is saved every day

Help a house with a lighthouse help

The ceiling in the corridor of the apartment on Timiryazevskaya is so low that, it seems, there is another step - and will crush. We trample on the rug 30*50, carefully remove sliding boots. A tight corridor to the room, a small window - there is almost no daylight, tiny Marina on a high bed by the wall. They give me a knitted stool, I sit on the contrary, Marina wheezes and grumble at my fussy rustles. She is very bad today. Herring is affected.

Marina with her mother photo: Evgenia Zhulanova for TD

Punk rock on the head

There is a pink T -shirt on Marina, in the ear - a round gold earring. A haircut is an incredible punk rock-a dense blonde hedgehog. Marina is nineteen. Surely she would have chosen this style herself, she would only throw a biker jacket on top and coquettishly stuck a pack of “Malboro” from the breast pocket. So that the name can be read. At nineteen "Malbore" smoking cool. But Marina will never have bad habits, because she drowned eleven years ago.

Marina watches TV photo: Evgenia Zhulanova for TD

Now mom chooses a haircut for her. Always briefly, so that it is more convenient to wash your hair. Marina can not even turn on the bed. She has a tracheostoma, gastrostoma and deceased encephalopathy. Unbearable names on which normal life ends.

Marina feeds mom photo: Evgenia Zhulanova for TD

Natasha, a tiny mother in a tiny apartment, picks up to the bed, launches a device with a thin white tube. He climbs inside Marina - pushes the tube into the lungs; A loud inanimate sucking sound bounces off the walls of the dark room. The ceiling is lowered.

Marina photo: Evgenia Zhulanova for TD

Marina is easier. Marina wheezes quieter.

Dairy pool

Natasha in paints remembers the day from which it all started, and the place in which. Warm children's pool in sunny summer Egypt, with water "for milk". They are four - with a friend and children - came to rest. It is still incomprehensible to whom and why it occurred to tinting the water in the plywood pool in a muddy white color so that the water column completely hides the bottom. If the water were transparent, everyone would immediately see the child lying at the bottom, nothing would have happened.

Marina photo: Evgenia Zhulanova for TD

If Natasha had not lost sight of Marina and did not run to look for her on the territory of the hotel, and not at the bottom of the "milk" pool, nothing would have happened. If they had not gone on this vacation, nothing would have happened to this Egypt. But eleven years ago, Marina drowned. It was possible to reanimate it only in a local hospital. How much time has passed, Natasha does not remember. They returned to Moscow, accompanied by two doctors. Marina breathed. And nothing more.

Insomnia five years long

Marina Photo: From Personal Archive

From a coma, she came out by the fall. She moved only her eyes. The tonus of all the muscles was lost, contractures were formed. Marina was injected by Botox in order to at least slightly reduce spastics, and taught to paint the picture on the computer with their eyes. A new childhood began-without staptracks, games in a mother-mother, white bows for September 1 and wailing wombers scattered throughout the house. Doctors, as usual, shrugged: "What do you want from us?" “To sleep,” Natasha answered. She lived five long -painful years under the ringing of a minus an alarm clock screaming every two hours that it was time to turn Marina to the other side.

Marina with her mother photo: Evgenia Zhulanova for TD

During these five years, shy Natasha has learned a lot. To ask each doctor an endless string of ambulances home, how and what to do, look for information about specialized funds that would explain at least something, study everything alone.

Marina with her mother photo: Evgenia Zhulanova for TD

Marina in five years also learned something. Speak with the eyes of “yes” and “no”. She suffered a huge amount of pneumonia. I loved to watch cartoons. I began to turn my head a little to the side. Marina was lying all day. The spine was twisted. She could sit a maximum of an hour and a half, then it hurts.

Live in pleasure

Marina Photo: From Personal Archive

Five years later, Marina and Natasha saved the Foundation “House with a lighthouse”. They gave the family a nanny, who helped on duty at night at the bed of Marina, provided a family with special nutrition, consumables, expensive breathing equipment; They began to solve the problem of a regular change in gastrostomic and tracheostomy tubes in order to avoid inflammation and suppuration, and helped to gain access to pain relief. Natasha got enough sleep, Marina finally smiled. And three years later she had a sister of Kira - a tiny heap was brought into a tiny apartment and put Marina in the head of the bed. "This is your sister, Marish." Marina cried happily.

On the day of shooting, Marina was better and she smiled at the photo: Evgenia Zhulanova for TD

Doctors of the "House with a lighthouse" for six years in touch with the 24/7 family. The family had a nanny. It has become much easier. Marina grew up, Kira grew up. Now she runs into the dark room and climbs to her sister under the blanket - watch the series in an embrace. “Ten years ago, Marishka and I just had to understand how we now live. How not to suffocate at night? Is it possible to do something to recover? First, I went crazy - an early rise, massage, washing, rubbing, exercises. And then I realized: what is the joy of these endless marathons? And we just began to live. For pleasure. As they could. "

Marina with her mother photo: Evgenia Zhulanova for TD

We disagree ineptly - it is time for Marina to take the medicine. Then she should eat something if she wants. I get up in the doorway and look timidly at her. A hard hedgehog will fierce the pillow, the golden earrings glitter in the twilight. According to the forecast, tomorrow it will be even colder. Hold on, Marina.

Please support the work of a “home with a lighthouse” that helps the family of Marina and Natasha. This is very simple - you can arrange a regular donation in one minute.

We talk about various funds that work and help in Moscow, but Moscow experience can be useful and used in other regions of the country.