Translated material
The camel has two humps
When Natasha was still a baby, her mother Nastya said that her daughter would not see and, perhaps, walk, she will have to live somehow. But somehow Nastya did not agree, and miracles, ordinary and not very
Help the road to helpOn the map of the Kirov region, the central village is similar to a walking camel. The Bolshaya Zheleznodorozhnaya street stretches along the bridle, a short -made green was perched on the hump, and the Mazins family lives between them, on Sadovaya Street. It lives very simple: in a wooden house with stove heating, seated water and gas in cylinders. This year they promise a harsh winter this year, so in local publics there are announcements for the sale of firewood, purchases of horns and mushrooms of chaga.
According to the 2010 census, 755 people lived in the central, but in ten years this figure was almost doubled: some left, others outlined their own. And the mazins are still holding on. Perhaps because Ivan has work in the logging, and Nastya did not fully come up with exactly how she would save her daughter.
Nothing can be done
In the meantime, twice a week she gets up at half -past five in the morning, drings the stove, cleans the paths from snow, runs along crispy sugar west to remove the laundry, which was angry overnight. Returns to the already warm house and prepares breakfast. Nastya by profession is a focus and if her daughter were “like everyone else”, she would return to work in a cafe and took her soul on chemical fuckers. But Natasha was born special, so Nastya carries her daughter to Kirov, to the Center for Support for families with children with the developmental features of “a road of good”: a five -year -old kindergarten, according to the documents, did not take Natasha, and there was no other for the development of a special child in their area.
Natasha photo: Julia Skorobogatova for TDThey have been traveling to Kirov for two years. Dad is constantly at work, so Mazin has to hire a car. Previously, each departure took place with Natashin tears and screams, and now the girl is glad for them: he listens to the snaping of the motor, the creak of seats, the rolling of cars outside the window. Part of the road Natasha sings quietly. Usually something that she taught in the center: “Clouds are white-haired horses”, “Christmas tree” or songs from the cartoon “Masha and the Bear”.
Nastya at this time looks out the window and recalls something pleasant. For example, how he and Vanya met at a wedding with his sister. Then, as she saw a test with two stripes and immediately said to her husband: "There will be a girl." Only with the date I did not guess - I counted on June 5, and the sixth came out, for Pushkin’s birthday. But Natasha came as in a fairy tale - for a long time and hard. Doctors even had to use a vacuum - they attached a bowl to the baby’s head, sucked to the weak bones and pulled, pulled. Nastya cried and cried, and obstetricians said that she, in general, was lucky, would have dragged the forceps earlier: "You are not the first, not the last, calm down."
Nastya has such a character that she would have calmed down - she would have a tamp fear in her Gorb invisible to the world and would wear silently. But one after another, the consequences of severe births popped up: Natasha put a pyramidal failure syndrome (the pyramidal system is responsible for the ability to walk), the girl lagged behind in development, and at six months it turned out that she still did not see: atrophy of the optic nerves.
It was a blow under the breath-Nastya brought his back, his legs became soft-soft, and the hump already seemed tangible and large.
“You can’t do anything?” - “Nothing.”
Six months of silence
All the way from the hospital home, Nastya was tormented: how to say about the diagnosis of Muj? There are so many stories about how husbands left more healthy children, and here - a whole disability with unknown consequences. Nastya noticed that her hot tears were dripping on Natasha’s cheek, woke up and decided: no, I won’t say, and then what would happen.
Natasha photo: Julia Skorobogatova for TDShe lived for six months under the weight of this secret, and when she already approached the very throat, she could not stand it and splashed everything out: about blindness, and about the delay in development, and about her legs. No one is to blame for anything. And the daughter is not to blame first of all: just someone goes through life dancing, and someone is weaving like a two-humped camel-nothing can be done. Ivan looked at his wife in bewilderment: “I love Serges more life. How could you think that I would leave? "
From that moment, something happened: not only in their family, but in general in the world. Nastya no longer cried because of the gossip that crawled around the village about their girl; She could quarrel with a doctor due to underlife and doubt the fidelity of the diagnosis of an optometrist. Because the doctors wrote one thing in the papers, and she saw a completely different one. Namely: that the daughter can sort toys, freely orient himself in the house, and when dad returns from the logging, rushes to him from all legs and never stumbled upon anything.
The exact awareness that the doctors are mistaken came already in the center of the "expensive good." There Natasha sat down to collect a mosaic and easily controlled with cells. A total blind man would never be so, which means that his daughter still sees a little. And Nastya remains to prove it to the ophthalmologists.
Dear fate
Fate was brought to the Center for Support for families with children with the developmental features of the “road of goodness”. No matter how hard she tried, but Natasha could not develop normally in four walls. She needed a special program and society - which means a kindergarten, in which a girl with severe visual impairment was not taken. Nastya knocked her legs to find a good specialist engaged in complex children in their area. But suddenly, in social protection, she talked with a woman, and she suggested that in Kirov there is a good center: there is a speech therapist, a neuropsychologist, and a motor -development teacher. Such children are raised that you are wondering.
Natasha in classes for special children photo: Julia Skorobogatova for TD"How much does it cost?" - Nastya worried, wondering how tightly she would have to tighten his belts.
“Not at all, this is a charity project. The costs are only on the road. "
So Nastya and Natasha were first in the center of "Road of Good". Six months took to adapt: Natasha did not accept an unusual atmosphere, other people's hands and categorically refused to join the game. And then the teachers still found a key to her: this is music. If Natasha put something calm, then the girl relaxes, is fond of and does almost everything. He even draws ... Yes, that girl who is considered totally blind, today draws a brush.
Anyway - in two years of classes in the center in Natashin development there was an incredible leap: she spoke, sang, dented, calmly remains in class without a mother and at home can also play for a long time: he loves an electronic piano and fairy tales that an interactive bear reads her. The most beloved is “where Kipling’s camel from the camel” and his own “where the armadillos came from.”
While Natasha is studying, Nastya is sitting in the “Mom’s room”: they discuss films, news and laugh a lot. According to the employees of the center, Nastya is the soul of the parent group, she helps beginners. He recognizes them from the lips-slings, by nervous hands and frightened views-that is, for all that she had once had. And he also shows Natasha on the phone: the video “It was old” is more eloquent than any words.
Natasha photo: Julia Skorobogatova for TD“When the pandemic ends, I will collect these videos and take Natasha for examination to the best ophthalmological center,” Nastya says confidently, now she herself is a camel and an armadillo. “It seems to me that there is still treatment for us.”
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That's what Nastya thinks when in the early morning they go to Kirov. Closer to the city, Natasha is already sleeping on her mother’s knees. Nastya takes the phone and makes the repost of the new event of the Center for the Road of Good. Someone will come to training, and teachers will come to the house or even in the hospital: because it is there that mothers make the main decision in life “not like everyone else” of a new person: refuse or leave?
The center’s experts always have one answer: “Leave it, but we will help.” And in 90 percent of cases it works. And then parents are taught to live in a new way. Therefore, the old poem “The camel has two humps, because life is a struggle” in the interpretation of the center would sound differently: “The camel has two humps, it just came out like this - fate.” About acceptance, understanding, forgiveness, faith and love.
Under the guardianship of the Center for the Road of Good today there are 80 families - and each carries its own invisible to the world. But it can be facilitated: for example, having made a donation to the center. Money will go to many teachers necessary for classes and salary. Nastya says that she has not seen such teachers as in the center anywhere, and Natasha doesn’t say anything about it, but when they drive up, she smiles and hurries to get out of the car. At this moment, Nastya’s tears gather in the nose.
*The text is prepared before the start of the second wave of the pandemic.