Vanka and Grandfather Ivan

Ten years ago, in the city of Chekhov on Markova Street, a boy Vanya, spelled by burdocks, slept in his cradle. And in the afternoon Vanya was wrapped like a pie in paper for compresses, it is for baking - burdocks were injected at night

But the paper was perfectly dissolved when bathing in water - they undressed.

At night, Vanka did not sleep, scratched, whimpered, domestic wore a roaring hench tower, from which there was burdock or plantar (in the winter - dried, freshly -fired) spirit, on his hands. The most persistent was the grandfather, he got the longest watch. Grandfather Ivan passed Afghan, bullet epidermolysis scared him much less than a grandmother and young, swollen with horror and afraid to touch a wounded baby. Grandfather later, after seven years, will tell Vanka the “magic word”, which you can speak hooligans, take away the persistent glances and leave the water, if they really get it: “And you say that you were burning in the tank.”

And Vanka so since then says: “ I have been burning in the tank. What are you sinking? "

Such as Vanka are called butterfly children. Thin, vulnerable, in scars and sores. Fragile, like a crystal New Year's ball. On which you need to blow with caution. And to pick up in your hands - this is generally with a soft rag. You hug a little stronger - a blister, then the skin goes away, leaving you naked ...

But this particular Vanka Nikishev is generally a separate case. God knew who to equip this time on Earth with this very epidermolysis. Because Vanka made it. And he taught his ancestors.

Grandfather Ivan confirms. He knows better. He survived in Afghanistan.

What, a grandson without skin will not survive, or what?

Beladonna

But in general, Lena Nikisheva says that no, he would not survive.

And what all the doctors said is a maximum of a year. Alternating this thesis with the question: “Why did you take something at all?!” I didn’t give birth, no, we have the 21st century. I gave birth - and okay, you have the right! But why take home?! And to bring to the reception with such expanded ones as from the Beladonna, with his eyes, a baby who has more than half of the skin - as if he had just been pulled out of the tank - one bloody wound. Grandfather dragged, in his teeth, like a kutenka, and then wrapped it with a plantain and burdocks (dad, the driver of the Chekhov’s regular bus - Moscow, went swolguls of traditional medicine, and her grandmother and her mother mowed all the environs of Markov Street, each bush was almost known in the face).

And what should they do? Doctors turn away, in Moscow there is one center, but he appeared later, in 2010. On the Internet, they wrote that with any lesions of the skin, burdock oil helps well, and dad Misha fell into the evenings, after the flight, in the kitchen in the pelvis, the roots of the burdock and made an oil for his son, wrapped it in grass in shoe boxes, skyscrapens standing in every corner of the apartment, dried wet napkins, so that they would then fix them on a sobbing sobbing The “cake” is a wrapper - thin, as for baking, paper. This idea came to Lena, you can patent: before the Nikishevs, folk thought did not know how to put on a child with bullous epidermolysis, so that she would not grow by half of her body in the evening, getting into wounds. And they were more cunning: wrapped, put on their son - and for a walk. They also hoped very much on the grandmas, sorcerers, holy sources, everyone hoped to remove the damage or there the evil eye ... But this is with any sore, if the doctors say only: “Better refuse” is a common thing.

Ivan Nikishev Photo: From the Personal Archive

In general, ten years ago, they lived in Chekhov these strange Nikishevs who did not refuse, and it seemed that the XIX century was still in the yard, when Pushkin’s children grow up in full-time and herbs, the Pushkin’s children, or still great domestic, when a hero Markov’s flight pilot performs a military flight, or the grandfather and grandfather masculously masculine. Grits life, and tanks are blazing around. The Nikishev’s peaceful life ten years ago took place in conditions close to combat, in complete social isolation, in the bosom, practically nature-burdocks had to be taken somewhere. They do not grow in a city apartment. And Lopukhov Nikishev needed a lot. Vanka grew. Burdocks - and children's cream for 50 re. That's what in 2010 60 kilometers from the capital of Russia was treated with bullous epidermolysis-chronically bursting, like a soap bubble, from touch, the thinnest wing, like a Babochkino, the skin of children.

And so Lena Nikisheva says not. Vanka would not survive. And he would not have survived up to ten years. I would not go to school. He would not have started a friend Lenya there. And he would not have chopped up with him until five in the morning at Minecraft, deftly hitting once fused, and then operated on and divided fingers along the buttons. I would not sit with my mother over the family. I would not play - neatly, of course, - to football. And he would not dream with his parents about his brother.

If not for the Babochka Children.

"Mom, stop making me!"

Foundation "Children-Babochka" with Vanka the weather. Born almost simultaneously, the fund - for a year only later. The year he was seriously given to Nikishev ... And in the country there was one “abandoned” diagnosis less - about which the district police officer in the clinic habitually and tiredly says: “Why did you take?”

Why? To live.

To the first Vanin's birthday, the fund employees reached the street of Markov in the city of Chekhov.

“They arrived immediately with all the materials - and I just had a shock when I saw these nets, which, it turns out, do not stick to the skin, special bandages and diapers, foam from burns, I realized that it is all sold, that all this can be bought and that our life will change right now! But, of course, to the realization that we are actually normal, ordinary, that we can live, like everyone else, we still need time. And when they left, leaving the reserve until the next time, I sobbed-from self-pity, to Vanka, who lost almost 80 percent of the skin due to improper care, due to the fact that in the maternity hospital he was glued with patchmings, taking them off “with meat”, or simply because we pumped it and hugged it-defenseless, wrapped only in the blasphemy ... now children who are born with bullet epidermolysis, have much more intact skin, because they do not lose it, because anywhere where the new butterfly is born, the nurse with a magical suitcase immediately flies away ... "

And no one else collects dandelions and burdocks on the outskirts of cities to swaddle their thin -skinned babies.

The Babochka Children Foundation grew up with butterflies. Provided with expensive imported dressings (this is like a corset for a Turgenev girl or armor for a medieval knight - without dressing anywhere; Lena this two -hour daily ritual of Vanka’s bandage, as a mummy, denotes the verb “wind”), knocked them out of the state (in recent years, the Nikishovs have already been received in the Moscow Region) He told mothers and doctors that yes, it is possible, it is necessary to take and do not put a cross, organized medical support of the families (“The dentist is only from the fund - in the mouth there are also wounds, the tongue has grown; the fingered fingers helped to operate on treatment in Israel”). The wings of these butterflies will always be fragile-crook. But the watercolor wings of the fund are strong every day - to cover as many new subtle creatures as possible. And to help their families break the cocoon of insulation and hopeless.

After all, the most difficult for the Nikishevs was not to rebuild in the usual way-to go to work, buy the son of a new thing, understand that Vanka should be prepared for school-and tore off, almost with the skin, tightly stuffed and already almost eaten into the subcortment of the fuss of the outcast: “All this time I lived with the feeling that we gave birth to some kind of freak that we were leaked. And as if guilty of somewhat ... "

This yoke of guilt pressed on the shoulders harder than the shovel with which the Nikishevs went to the "subbotniks" behind the burdocks, each time they further from Markov Street. “But no one in the city was aware of anything. We did not tell anyone that we have such a child. What is the point? No one could help anyway. The fund is ... as if released from the underground. We lived with the feeling that we are alone around the world. But it turned out there are a lot of us. ” To stop blaming themselves, starting to rejoice at life again, the Nikishevs were able to dream of another child only thanks to the fund - and, of course, the younger Ivan.

Vanka did the main work. Firstly, because he is the grandson of Grandfather Ivan. And secondly, because God knew who to send bullous epidermolysis.

“Mom, well, stop some of me ... to do it! I'm normal! "

"Some kind of fool!"

Misha Nikishev fell in love with Lena when he worked on a truck, and she was in his grocery. Invisible strict woman behind the scenes of the counter, the Operator of the PC. Misha brought to unload the products and, while unloading, immediately this woman blurted out: “You will give birth to a child to me!” -"And I thought: some kind of fool!" So everything happened. “I took it with impudence. We have everything on the drum with dad! Well, the son is the same. " The same paternal directness and determination (well, by grandfather, of course, by methods) will then be Vanka Nikishev to take both his first “B” and the female half of the family, which still could not come to his senses.

Elena, Mikhail and Ivan Nikishev photo: from personal archive

“When I see how Vanka behaves, how she relates to her condition, I understand that all the problems are in my head, these are my complexes, and not my son diagnosis! Vanka-an activist, began to speak, he has many friends, and if someone teases him, he simply turns away: “So we are not on the way.” She was afraid that he would be injured - it turned out to be enough for everyone to explain: “Vanya did not push, not to touch with his hands!” I thought that I would have to leave work, sit in the corridor on a bench while he was in the lessons, insure ... And in the end she sat in September for a week, and he said: “Mom, you go.” But she could, it turns out, to give it to the garden ... if I had not been afraid. Moms who are younger, after me who gave birth, are no longer afraid. ”

... Ivan Nikishev-the youngest wants to become in the future-no, not like a grandfather-warrior. And as a father - a driver. “Previously, I thought to drive the imminent, to help people. And now strictly - regular buses. To carry people. ”

So one day our Vanka will go on the flight of Chekhov - the future. He will fly there, with a wave of lilac wings. And he will take us on board. Frightened, unbelievers, small. Ivan-Afghans, a bored Misha, spent Lena, dashing classmates, a confused local pediatrician and all children, and all the butterflies, and all the living. "And what, we are all normal." He will give the beep, press on the gas, waves his hand. And we will live happily ever after.

Once on Earth.

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