A child with SMA from Murmansk received an injection of Zolgensma. This is the most expensive medicine in the world
A boy from Murmansk, diagnosed with spinal muscular atrophy (SMA), Misha Zhukov, received an injection of Zolgensma. The injection was made in Moscow during the pandemic. this Misha's parents reported on VKontakte. For 5 months, with the help of the media, various actions and the Alyosha charity fund, the family raised about 50 million rubles to buy the drug. The main amount, 161 million, was transferred to the account of Misha Zhukov in May by an unknown philanthropist.