"If they had not left the country, the daughter would have died." In Russia, they refuse to treat children with SMA
After the death of Zakhar Rukosuev from the small Krasnoyarsk village of Boguchan, his parents announced an unlimited picket near the building of the regional government. Zakhar had a genetic diagnosis-SMA, or spinal-muscular atrophy. His parents are now trying to prevent the death of their senior Dobrynya, also suffering from SMA. Zakhar Rukosuev died on January 30 in a children's regional hospital. He was two years and eight months.