In Orphan diseases, even doctors are sometimes mistaken. Patients themselves beat the alarm, look for specialized specialists, knock out directions for tests, control their indicators, delve into the causes, discuss their prospects in thematic communities on VKontakte. “Such things” figured out what to do and what to wait if you live in Russia and you have a rare disease - ITP, primary immune thrombocytopenia "Bruise, and okay" “Kira was a year and a half when she fell ill.