The heroine of the "new", a girl from a smudge from Bashkiria, won the most expensive medicine in the world in the lottery
The one-year-old Anelia Rafgutdinova, a girl with spinal muscle atrophy (SMA) from the Bashkir city of Kumertau, won the Zulgensma drug in the lottery from the manufacturer Novartis. “I am leaving for work in six days for two months. I did not know how to leave his wife alone, but here is such a miracle, ”said the girl’s father, Damir Rafgutdinov,“ new ”. “Although we still have a lot of work ahead.” Damir and Evelina with her daughter Anelia.