In 2019, “Such Things” wrote about Polina Leonova from Naro-Fominsk near Moscow, the first girl in Russia with the rare genetic syndrome DDX3X. We recently talked again with her mother, Irina Leonova, and she talked about how she tried to improve the lives of families with special children in her city, but came to a feeling of complete hopelessness Irina Leonova was born and raised in Naro-Fominsk.