Translated material
A month without panties
Bone marrow transplant is often the only way to cure some types of cancer. Irina Gatilova found out about this from her own experience. She worked in PR, lived in the Czech Republic with her husband and little son, when she got bad results of a planned blood test. After several courses of chemotherapy, she was prescribed transplantation. There are many myths and fears around this procedure, so the “cold” asked Irina keep a diary. In it, she tells how she lived a month of strict quarantine, could not eat and lost 15 kilograms and what else brought her this experience.
I did not leave the ward, weighed my urine, could not eat without tears due to pain and lost 15 kilograms. All due to bone marrow transplant
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07.11.24
The path to the hospital took almost three hours. At the entrance, the nurse begins to take away from my things those that can be taken with you. Hopes did not materialize: a set of panties is leaving home. Only Kroks, a hospital shirt and a couple of turbans remained. The scatter tea also did not go through the test - it turns out that it may be mold, and this is dangerous ( before transplantation, the patient’s immunity is suppressed to prevent the rejection of donor cells, so even harmless microorganisms become dangerous. - approx. “Cold”) .
A few allowed things go to disinfection, and they send me to the shower, and then they are taken to the ward - all the air is filtered here.
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In the evening, I was put a PIC - a special catheter in which medicines are served, and it also helps with the analysis. On the hands of the veins suitable in size is no longer, so this time the catheter was installed directly above the chest. Now I feel like a nursing mother who gets a pipe from under the shirt.
08.11.24
Today there was a puncture of bone material. I coquettishly covered myself with a blanket to the waist, referring to the coolness in the room, but the nurse quickly presented my bare ass not only for the doctor, but also a bunch of students.
The sensations from the procedure are so -so: it resembles a reception at the dentist, only from the ass. It is unpleasant, but in the evening nothing hurts. Childbirth, for example, will never forget, and this is quite “forgotten”.
I hope this time I will not have skin as in past chemists
In the afternoon I was connected droppers that will drip until the discharge. From them the weight immediately crawled up. The first time I did not even know that the droppers were essentially water, and was perplexed why I was running to the toilet so often. They control here not only what is “entering”, but also what “comes out”. Campaigns to the toilet are measured using special cups and plums in milliliters.
In the evening I sat down for business. I try to work when there is an opportunity and strength. It's not even about money, but in mental health. The work helped me survive the pregnancy and not go to Kukukha, and now helps out. Especially when some of the colleagues are not even aware of what is happening. Calls also help me - with family, friends, psychologist.
09.11.24
A day similar to a full -fledged day off. In the morning, the classic of rituals: tests, shower, charging, “ Duolino ”, breakfast. Then she wrote a plan for the weekend - it helps to keep her head in order. I had the strength to draw up a content plan, correspondence with a local cafe for work and ordering cosmetics. In the evening, Netflix and coloring - such leisure helps to switch in a difficult time.
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There was a morning and evening bypass of doctors, a dropper, tablets three times a day. Chemotherapy will begin tomorrow - the toughest of all, as I was told. I hope this time I will not have skin as in past chemists.
10.11.24
They began to drip chemistry, so the dose of tablets grew. Some for the stomach, others for sleep, as well as vitamin A to prepare the body for transplantation.
Outside the window, the impenetrable fog all day - the locals explained that “we are in the yol” (the dialect name of the lowland or ravine, if I understood correctly). It looks beautiful, still garlands and candles in the ward, so as not to pay attention to grayness outside the window.
The rest of the day is calm: breakfast, exercise, language lesson, shower, a little work, calls with her husband, correspondence with her best friend. In the evening, the series and the book.
11.11.24
The next day is a groundhog with the usual rituals. The manager came: “Bad? No? Then get up, walk, still come in. ”
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Then the doctor looked with a story about how I could be, or maybe not to be after a transplant. Perhaps I can recover from psoriasis - there would be a great gift (after bone marrow transplantation, a persistent remission of psoriasis is really possible . - Approx. “Cold”).
12.11.24
We phoned the sketches community, with whom we have been drawing together for many years (as a hobby), usually architecture and city landscapes. They chatted, someone painted, and I thought whether I could break with them on a trip at the end of winter.
The third day they drip chemistry, so I cautiously examine myself and listen to all the signals of the body. So far, it seems to be quiet.
13.11.24
The first dose of "pre -transplant" chemotherapy ended. They promised problems with the stomach, but it did. But the fall of blood indicators is immediately felt: the strength is less, the mood is worse. I already passed it.
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Then a new drug with a great risk of such effects will begin to be introduced. After him, there is already a transplant. The transplant will fly to me straight from the UK. For some reason, I thought that the donor would be here or in Finland. I am very glad that insurance covers everything, and I do not need to think about how to find money.
11.11.24
They put a new chemistry to me - it is clearly heavier, I got worse. Started to peel off their hands. They give drugs so as not to puke, and still saves the stake.
In the morning a friend came and brought permitted guests. Then I entertained myself with a stupid film.
16.11.24
Today they put a large dose of chemistry. It was warned that it would be difficult, but there was a weakness and indignant stomach. The whole day lay "on the monitor" ( connected to devices that tracks the indicators. - approx. "Cold" ).
In the afternoon, husband and friends arrived. The son handed over a knitted penguin with a message that he is now playing Minecraft. Thanks to her husband for dinner dumplings.
11/17/24
A helicopter flew at night - my ward is close to the landing site, so they are especially audible. I washed without sleep. As a result, in the morning 37.1. I tried to align myself with a charging with a ball ball that my husband brought. Then I slept for a long time, I even had to change bedding: from chemistry you start to sweat strongly. Here they give out interchangeable nights, such as in the " Centerville Ghost ."
In the evening I painted the picture by numbers - I liked it.
18.11.24
Being in a “loner” is difficult to influence what is happening outside the hospital. Today I had to get bored at work due to unfinished time.
I wrote to my son an audio skid about his favorite cartoon "Puppy Patrol". I feel that I do not have time to devote time to parents who came to help with the child. Okay, when I write out, then I will stay with my daughter.
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An important day tomorrow. I hope the courier is ready to deliver a new life to me.
Transplant day - 19.11.24
In the morning, the weather raged, flights from London were slightly lingering. The doctor immediately warned: before 18:30 the courier is not waiting, the transplant is planned for the evening.
In the afternoon, I managed to sleep, and work, sat down to watch a new issue of Parfenov. By the end of the series, the nurse looked, said that the doctor would soon check all the indicators - and let's start.
Finally, the attending physician came, once again explained that I was waiting for me in the coming days, and began the procedure. No spacecraft - just a transfusion through the catheter 400 milliliters of liquid similar to tomato juice. Liquids that save my life.
I hope we will quickly find a common language with the new bone marrow.
11/20/24
The broken one woke up. During the charging, the doctor came in, advised to engage in breathing exercises. The students looked - look at my apartments.
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I made a blood transfusion - after the transplant, donor blood is “added”, because my indicators were specially reduced for transplantation.
In the evening they will put a new chemistry so that my body does not “swear” on donor material ( sometimes after transplants there is an acute reaction “transplant against the owner”, in which donor cells attack the patient’s tissue. - approx. “Cold” ).
11/21/24
Because of the drugs, I dreamed of "arthouse" dreams. From other side effects: weakness of the stomach “within the framework of the norm”. Suddenly, a food infection or a bacterium appeared, so all the dishes were replaced with a one -time one.
I went to read articles on my topic in Google - it was not worth
I am saved from boredom with work, calls to my husband and drawing under the Netflix documentary.
22 . 11.24
It seemed that after the transplant, it would end as if by the wave of a magic wand. I knew that the reactions could be different, but I wanted them to be not. Alas, the stomach is weak, the mouth is peeling, the appetite is gone. Apparently, platelets decreased in the blood - I already know this, passed. When they return, there will be a surge of strength and appetite.
At night, they will put a second dose of chemotherapy. The back hurts wildly, I will definitely go to the massage when it ends.
11/26/24
The weekend I lay flat - severe chemistry affected. Fortunately, yesterday was the last dose.
I managed to work and even process. Therefore, today I immediately agreed with myself that I am resting. I tried to knock out the status of my documents about permanent residence from the Consulate of Kazakhstan ( Irina is a citizen of Kazakhstan. - Approx. "Cold" ), cursed on it on Instagram, and now I will go to read the "murders and cakes" of Peter Boland and sleep.
11/27/24
The days when platelets return after chemistry, I determine better than any blood test: more energy at once, I want to work. Still not such a day, but already close.
The stomach still occasionally reminds of itself - it is almost impossible. Language and throat are hurt so far. In addition, yesterday my body unexpectedly decided to resume menstruation, but they were quickly “stopped” by the doctors.
They poured me a dose of leukocytes and a batch of donated blood. Now the main thing is to believe that we will never meet with this rubbish [cancer].
11/28/24
A little less strength than yesterday. I worked, rested. Aitin wrote to LinkedIn: they offer work in Prague. I studied information about their team and management - if I were younger and worse, maybe I would continue the dialogue, but not now.
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My mouth and throat continue to torment me, so I order the soft all the food. The necessary blood indicators began to grow gradually. The numbers are very small, and while they are written off for a laboratory error. But if this is not a mistake, then my donor is smart and gave me great material.
29.11.24–30.11.24
At night, the throat began to hurt a lot - so that it did not swallow. A friend came on Friday - which buzz was just chatting with a living person.
Today the sun was shining and the family arrived, they brought home soup from the battal. To evening drawing, a release for a social project was added.
01.12.2024
The first day of winter. Outside the window is fog again. I feel like a boiled fly: my throat is still tormenting, I almost stopped drinking because of this, I sleep badly.
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The indicators are growing a little. I hope that this is a real growth, then the torment with the throat will end and I can eat.
02.12.2024
On Mondays, expanded tests are collected. The doctor said the results are good. I'm waiting for the throat will return to normal. At this stage, another side of the side effects may come, so it is too early to guess.
After breakfast, I worked with a social project.
03.12.2024
Two weeks from the day of transplantation. I feel good, but I went to read articles on my topic in Google - it was not worth it.
Progress today: the throat still hurts, but I can already eat almost without tears.
All the necessary indicators flew up, perhaps I will be discharged next week. We must have time to finish the picture that I draw in order to give it to the doctors (the usual gifts are not particularly welcome here).
04.12.2024
Slotes pour the river. The doctor, seeing this, instantly sent a spray. With a disease like mine, you begin to be afraid of any microbes and colds. I don’t know if it will pass over time.
It helps me not to lose touch with reality that people perceive me normal. Before the transplantation, my colleagues removed me from meetings, thinking that I would "lie down." Without me, everyone would have coped, but meetings help me - I forget about the diagnosis and feel like an ordinary person with work.
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The son asks me to tell the doctors that he misses me - hopes that they would like me to let me go like this. My little, if it worked like that.
05.12.2024
I was released to “take a walk” along the corridor in the astronaut’s costume: a dressing gown, a respirator, gloves. The dropper rode after me. There was an exercise bike, but I was not burning with a desire to get on him with an almost naked ass.
In the evening, a former colleague wrote and said that now she was also fighting oncosaurium. I asked how I manage to hold on. All evening we threw vocal. Once again I was convinced how important that you had not only a professional doctor, but also empathic. I really want this girl, and I, and everyone else could defeat cancer and never shake again in anticipation of verdicts.
06.12.2024
I was "removed" from the droppers. It will become easier to go to the toilet at night and move in general. For the first time in a month, the clock show the figure more than two thousand steps. The path along the direct corridor is simply given to me, but let's see how it will be at home - after discharge it is always very difficult to return to the previous norm.
Cocoa is brought to one of the drugs - it's nice. Tomorrow a month from the date of hospitalization.
07.12.2024
Recently, one person told me about me in social networks so warmly that I burst into tears. And in the morning I received a message from my favorite punk group "Porn films" with words of support. It was all so cute and wonderful that it gives faith in the best.
I feel good. There is slight weakness, the pressure is low, but this did not prevent me from finding my two thousand steps.
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The analyzes showed the numbers necessary for discharge, but the weekend came, so no one will do this. But there is a chance to finally put on my underpants and go home on Monday-Tuesday.
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08.12.2024
Despite the pressure, I managed to take more than three thousand steps. I have not yet finished the picture, because I sat down to work. I was no longer enough for the social project with which I cooperate - I will do it tomorrow.
The dose of the drug that is served with cocoa is reduced. Waiting for discharge.
09.12.2024–14.12.2024
On December 9, I was discharged. I did not have time to finish the picture. Life spun, but at the usual pace I have no strength yet.
On Thursday, I was on the inspection: the most important parameters grow, the pressure returned to normal as soon as I was at home. I went to the hospital for three hours driving - it was very difficult, then I lay three hours. I will ask the hotel for the next time - I seem to still have the right to him.
In a week they will do puncture and watch how the bone marrow behaves a month after the transplant. The procedure is unpleasant, but necessary.
Now I keep not only this, but also a medical diary: I write down everything that happens to the body.
At home, we dressed up a Christmas tree, watch movies and cartoons. I gradually eat what is prescribed by a diet. I bought a down jacket - I used to wear L, now XS - in hospitals I lost about 15 kilograms and began to freeze terribly.
After discharge
In the first month, I went to the examinations weekly, then every 12 days. Now - once every two weeks. They continue to pour cocoa, but he is not so pleasing to me.
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New side effects appeared at home: pigmentation and peeling of the skin. Doctors say that this is not. Then the infection appeared, it was possible to calm it down with medicines, otherwise there was a risk of hospitalization.
For four months, I was gradually canceled and reduced some drugs. Then they additionally agreed with the insurance another, necessary to increase the chances of full recovery.
I still weigh, as in my student years, and I will not lie - I like it. Despite the fact that the transplantation itself was easily, rehabilitation was not very fast, by my personal standards. Only now I feel the strength in myself to work if not 100%, then by 85–90%. Again I can go to the hospital at the wheel early in the morning of 130 kilometers one way and return on the same day.
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The imagination about health is still not retreating. I constantly listen to my body and call doctors. I hope that it will pass over time. In further plans - to tell about all this from the stage and make a few more projects so that people who are faced with similar stories are at least a little easier.
I will summarize a small result. Life is sometimes difficult, but still fascinating. Everything will definitely pass. If you laugh a lot, then some rubbish will surely get scared and run away. In no case should you be afraid to ask for help when you need it, even if you just need to talk.
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Author: editors of "cold" photo: provided by Irina