The Novosibirsk Investigative Committee opened a case of negligence due to the death of a 17-year-old girl with spinal muscular atrophy
She was prescribed an expensive medicine, but she did not have time to receive it The Office of the Investigative Committee for the Novosibirsk Region opened a criminal case of negligence due to the death of a girl with spinal muscular atrophy ( SMA ) from the city of Kuibyshev. According to the Investigative Committee, according to preliminary data, the girl needed the drug risdiplam (trade name “Evrysdi”) for treatment, but it was not provided on time.